Breaunna Hoffman
Hi everyone, I'm Breaunna Hoffman. I am from Pennsylvania. I'm 24 years old, and I was 15 when I was diagnosed with Friedreich's ataxia. Otherwise known as FA. I never really showed symptoms of FA growing up, except I was "clumsy." At 15, I developed severe scoliosis in my lower back. Doctors ran tests and diagnosed me with FA. Growing up I avidly played sports, so; I was in denial for years. I felt so alone until I was 19. I started using a cane to be more stabilized. At 22, I started using a rollator/walker, as much as I didn't want to be 22 in using a walker, it was a definite game-changer for me. It gave me so much freedom in my everyday life. It's allowed me to walk without having constant anxiety that I'm going to lose my balance and fall. Every day for me is different from the next. I watch my niece and nephew. I'm currently enrolling in a clinical trial for FA, & I'm also a FARA ambassador. I became an ambassador because I find spreading awareness for FA is so important!! I enjoy spending time with family friends and my boyfriend. I love to travel and listening to music.
Name: Şeyma Öztürk
Hello, my name is Elvis. I'm a personal trainer, a university student, and a FARA ambassador hailing from Sydney, Australia.
Name: Henry Sykes
Beat your Coronavirus boredom! Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. FARA Ambassador Jean Walsh will lead March's hangout.
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2020 (71)