Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

Kayla Louise Hellegers

KaylaName: Kayla Louise Hellegers

Age: 27

Where do you call home? Blue Mountains, Sydney Australia

Education: Animal Studies and Higher School Certificate through TAFE.

Who do you live with? My mum, my dad, and my dog Jemmah.

What's a typical day for you? I get up early with dad before he goes to work. Most days, I undertake study, watch TV, play board games and make my own gift cards.

How long have you known you are living with FA? I was first diagnosed as a five-year-old in 1997, but I didn't really understand what it meant. It was confirmed through a blood test, which was fairly new at the time. I have very little memory of life prior to my diagnosis of FA.

Elizabeth Bowen

Elizabeth BowenMy name is Elizabeth Bowen. I was born and raised on Hilton Head Island, South Carolina. I was first diagnosed in 1998 when I was 14. I am the oldest of four and no one else in my family has had FA.

When I was 12, I wanted to be on the basketball team at school, so I went to get a sports physical and the doctor told me that I had scoliosis. My parents then took me to a doctor to address the scoliosis and due to reports of my lifelong lack of coordination and balance, what they thought was simply clumsiness, and movements the doctor noticed that I made, lead the doctors to think that there might be something else wrong and ended up testing my DNA and finding out that I had Friedreich's Ataxia. I played soccer at the time and for a while after. I also did join the basketball team when I was 12, but I turned out to be terrible at being on the court, lol.

Jennifer Garner

JenniferName: Jennifer Gasner

Age: 47

Where do you call home? ​San Diego, California

Education degree(s): BA in English, MS in Recreation

Who do you live with? I live with my boyfriend.

How long have you known you are living with FA? ​I was diagnosed at 17 in 1990 after a year by two doctors. It was before the blood test existed, but when the test was available, ten years later, it was confirmed.

Are there any others with FA in your family? No

Lily Kate King

Screen Shot 2020 04 23 at 10.17.23 AMName: Lilly Kate King

Age: 16

Where do you call home? My home is Winnsboro, Louisiana, which is in the northeast part of the state.

Education: I am a sophomore at Franklin Parish High School, where I am an honor student.

Sophia Sieber-Davis

SophiaMy name is Sophia. I'm a 29-year-old artist living in Northern California with my partner and our two young sons.

I was diagnosed with Friedreich's Ataxia at 13, though I noticed I couldn't keep up with the physical activities of my peers early in life. At 14, having just entered high school and the most awkward time of life, I struggled to maintain focus and calm in navigating through crowded hallways. I remember how much mental power it took to keep my gait steady. This was the point when I convinced my best friend to get her nose pierced with me; I wanted something I could concentrate on while I walked. No, it didn't make me cross-eyed- just being able to see its faint sparkle in front of my face gave me confidence and a sense of safety. It still does.

Page 10 of 215

SHARE

FacebookTwitterLinkedInYoutube
Science B.jpg

 

Archived in
  the Ambassador Blog


Site Map     Privacy Policy     Service Terms     Log-in     Contact     Charity Navigator