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Şeyma Öztürk

Seyma 3Name: Şeyma Öztürk

Age: 23 years old

Where do you call home? Denizli, Turkey

Education degree(s): Post Graduate Education/ Be an academician and being the first academic FA patients in Turkey.

Who do you live with? I'm single, no kids. I'm living with my family.

What's a typical day for you? I wake up, have breakfast, have a rest, watch the series on the computer, read books, sleep.

How long have you known you are living with FA? I was 12 years old, and under the control of a doctor at Dokuz Eylül University in Izmir, the tests were performed because they suspected FA.

Elvis Trompf

ElvisHello, my name is Elvis. I'm a personal trainer, a university student, and a FARA ambassador hailing from Sydney, Australia.

I was first diagnosed with FA back in October 2019 (I was 26) when it was confirmed with a genetic test but was given the general diagnosis of Ataxia in November of 2017.

Growing up, I had always felt different from the other kids. I was a bit clumsy and uncoordinated, but still a cheerful guy. I always took comments about my symptoms in my stride; until they started to become more pronounced and noticeable, and walking around had started to become increasingly difficult.

Henry Sykes

Henry SykesName: Henry Sykes

Age: I am 22

Where do you call home? Kent, United Kingdom

Education degree(s): I have qualifications in English, Mathematics, ICT, and a BTEC in Motorsport Engineering. I'm very interested in Social Media and provide consultancy for a number of local companies.

Who do you live with? I live with my parents, brother and his girlfriend.

What's a typical day for you? I'm contracted two days a week to assist a local landscaping supplier to help manage their website and online orders and general office work. I then assist other private clients with online advice and support.

March Teen Hangout 2020

Screen Shot 2020 03 20 at 10.31.37 AMBeat your Coronavirus boredom! Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. FARA Ambassador Jean Walsh will lead March's hangout.

Megan Leeper

MeganHello! My name is Megan Leeper.


I live in the north Texas area, and I was diagnosed with FA at 19. I always thought that I was just a little clumsy growing up but found out it was all because of FA. I am currently studying Forensic Psychology online from SNHU and hope to be able to travel globally when I finish my degree.

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