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Henry Sykes

Henry SykesName: Henry Sykes

Age: I am 22

Where do you call home? Kent, United Kingdom

Education degree(s): I have qualifications in English, Mathematics, ICT, and a BTEC in Motorsport Engineering. I'm very interested in Social Media and provide consultancy for a number of local companies.

Who do you live with? I live with my parents, brother and his girlfriend.

What's a typical day for you? I'm contracted two days a week to assist a local landscaping supplier to help manage their website and online orders and general office work. I then assist other private clients with online advice and support.

March Teen Hangout 2020

Screen Shot 2020 03 20 at 10.31.37 AMBeat your Coronavirus boredom! Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. FARA Ambassador Jean Walsh will lead March's hangout.

Megan Leeper

MeganHello! My name is Megan Leeper.


I live in the north Texas area, and I was diagnosed with FA at 19. I always thought that I was just a little clumsy growing up but found out it was all because of FA. I am currently studying Forensic Psychology online from SNHU and hope to be able to travel globally when I finish my degree.

March FA Hangout 2020

March HangoutThe FARA Ambassador Program presents an FA Hangout talking about: How you stay healthy! Lake and Brittany are leading the discussion. Do you exercise? What do you eat? Let's talk!

When: Tuesday, March 24th and Wednesday, March 25th at 8-9:30 PM EST (Hangouts will be the last consecutive Tuesday and Wednesday of the month, except on holidays and the like) at 8-9:30 PM EST

How: Email fahangouts@gmail.com to sign up or ask questions. FA Hangouts do fill up. It is first-come, first-served. So, the earlier you sign up, the more likely you are to get the date and time you want. Lately, all our hangouts have been filling up. If you signed up and can't make it, please let us know so we can give the slot to someone else.

Seth Holm

SethHey there, hi there, ho there! My name is Seth Holm. I'm from Minnesota and am a quarter of a century-old! Currently, I tutor in elementary, middle school and high school math. I'm also preparing to go to school in the fall for accounting to become a CPA. I was diagnosed with FA at the same time as my sister in 2015 just weeks after my 21st birthday.

When I was first diagnosed, things seemed pretty grim and it was as if the world was conspiring against me. But the moment I learned acceptance and started conversing with others in the FAmily, everything got so much brighter. That's why I joined the Ambassador Program, not only for myself but to be that positive light in recently diagnosed persons' lives. To show that this isn't the end of the world, but the beginning of a new one blessed with opportunities of strength, fortitude and empathy. We can still do anything we set our minds to; it'll just take a little more patience and a little less
negativity. The only thing more pointless than the Oxford comma is pessimism.

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