Name: Kayla Louise Hellegers
Where do you call home? Blue Mountains, Sydney Australia
Education: Animal Studies and Higher School Certificate through TAFE.
Who do you live with? My mum, my dad, and my dog Jemmah.
What's a typical day for you? I get up early with dad before he goes to work. Most days, I undertake study, watch TV, play board games and make my own gift cards.
How long have you known you are living with FA? I was first diagnosed as a five-year-old in 1997, but I didn't really understand what it meant. It was confirmed through a blood test, which was fairly new at the time. I have very little memory of life prior to my diagnosis of FA.