FARA Ambassador ProgramStephanie Magness
Name: Stephanie Magness
Age: 39
Where do you call home? Santa Clarita, California
Education/Career: B.S. in Psychology; Minor in Religious Studies with a Concentration in Substance Abuse Treatment from Regent University (Not that I work in that field, lol).
How long have you known you are living with FA? I was misdiagnosed with Charcot Marie Tooth in 1994 after my scoliosis was found during 7th grade P.E. screening at school. That was right before the Friedreich’s Ataxia gene was discovered. Every doctor I had just seemed to go along with the initial diagnosis until my progression made it clear there was something else going on. So 10 years later, I finally ended up in Dr. Perlman’s office at UCLA where genetic testing confirmed FA. I was 22.
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2021 (26)