FARA Ambassador ProgramChrysanthi Zouva
Hi! My name is Chrysanthi, I am 37 years old and I come from Greece.
I was diagnosed with FA when I was 20, but I have been experiencing symptoms, such as instability, since I was 17. The diagnosis came relatively quick for me, but it was not an easy process. Between my anxiety about school at the time, and not showing any specific symptoms, it was hard to identify and diagnose the disease. After the diagnosis came, dealing with the disease itself was difficult. I started taking care of my physical health early on and I think that has helped me a lot because for many years I could walk and did not have to use a wheelchair. While I am currently using a wheelchair, I still make sure to stay active by doing hydrotherapy, physiotherapy, and I also love to exercise using a handbike. I believe exercise is key to all neuromuscular diseases and people’s general well-being as well.
How do you make friends? Do you have friends who have FA? 
Name: My name is Maria Sobotka. I don’t know why, but I’m called Mary. 
My name is María Mercedes Sebastián , I’m 32 years old. I was born in Ecuador, but my parents and I are living in Madrid, Spain now. I studied administration and I also have an MBA, but actually I’m not working because working demands a lot of energy that unfortunately I don’t have at the moment. 
Name: Dr. Georg Herdt 
2021 (61)