FARA Ambassador ProgramNara Fernandes Lucio
My name is Nara, I'm 27 years old, and I currently live in João Pessoa, in the State of Paraiba, Northeast of Brazil.
It's been ten years since I was diagnosed. I was 16-17 years old and a high school student. I started using a wheelchair when I was 23 years old. For me, the transition was a mix of anxiety and a sense of freedom. Like many people, I thought that the wheelchair was a prison until I found out that it brought me independence and allowed me to go to many places on my own. I need to have moments when I feel alone and independent. My moments of anxiety always happened when I met other people. The way they looked at me, the hidden pity, the questions, all of that made me uncomfortable and anxious about their reactions. It took me a while to learn how to deal with situations like that and to understand which things and behaviors I could change or be beyond my reach to change.
Name: Sahithi Dingari
Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. February's hangout will be led by FARA Ambassador Michelle Huebner.
In honor of Valentine's Day, let's talk about relationships! How does FA affect your relationships? Let's talk! This Hangout will be led by ambassadors Morgan L and RJ.
Name: Glenn ter Borg
2020 (53)