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FARA Ambassador Program

FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for treatments and a cure.

The Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.

FARA Ambassador Program Mission Statement:

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

The Ambassador Blog

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This blog is a vehicle for the voice of the FARA Ambassador Program and features posts from Program participants and friends from the FA community on a wide range of topics.

The blog features posts about FARA events, articles about living with FA, spotlights on individuals throughout the FA community, weekly interviews to “Meet the Community,” and more. We hope that you will be inspired, uplifted and encouraged through the FARA Ambassador Blog!


FA Hangouts - March 2021

20210114_123951_0000 From your friends to your family members: How does FA affect your relationships?

RJ and Morgan are curious. March 30 & 31.

Marian Soto Coronado

marian-soto-coronado Name: Marian Soto Coronado

Age: 50

Where do you call home? Oliva de la Frontera (Badajoz), Spain.

Education/Career: I’m a school graduate and I have an administrative assistant degree. Currently, I am a housewife.

Who do you live with? With my husband and my two children.

What’s a typical day for you? I get up and have breakfast, I gather everything I can and I put on the washing machine, then I make lunch… In the afternoon, I do gymnastics and then a little pool workout, some days I spend some time with my friends at my house and the time I have left, I read or watch TV etc. I try to be with my children as long as I can between one thing and another.

Libby Schwers

brittany sommerfield Hello! My name is Libby Schwers and I am 23 years old. I live in Des Moines, Iowa and work as a graphic designer at a smaller agency.

I was diagnosed with FA when I was 22, but I've been experiencing symptoms of FA for about five years now. The diagnosis was a hard pill to swallow, but it has helped me to become the strong, courageous woman I am today.

Josué Lira

Josue-Lira Name: Josué Lira

Age: 22

Where do you call home? I live in a rural area around the city of Sao Caetano, in the State of Pernambuco, Brazil.

Education/Career: I finished high school.

What’s a typical day for you? I spend my days taking care of the cattle on my parent’s farm. I start my day having breakfast and watch my mother milk the goats. After the milk is collected, I help her to take the herd back to the pasture and sometimes my nephew helps us. The next round is to feed the chickens and collect their eggs. In the afternoons I walk the farm with my dog and do some weeding. This is an everyday job and essential to keep the pasture productive.

Jack Dewitt

jack-dewitt-2 My name is Jack Dewitt. I am 21 years old, and I was diagnosed with Friedreich’s Ataxia at age 10.

I currently live in Michigan and am going to college at the moment, majoring in both communications and theater. I am also a firearms enthusiast and 2nd Amendment advocate. This led to me founding and building my very own business called Cards Custom Arms. My business manufactures a variety of handgun holsters and magazine pouches. We also provide custom cherokee jobs for anything from pistols to rifles to motorcycles. One of my passions is hunting in which I have been lucky enough to take both elk and deer.

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