Description: This is a 5-year observational study that will measure heart function, exercise tolerance, speech, swallowing, and motor function.
Key Criteria: Ages 8-70 years
Location: University of Florida, Gainesville, FL
ClinicalTrials.gov - www.clinicaltrials.gov/ct2/show/NCT02497534
Please review the study flyer below, and contact the Study Coordinator with any questions.
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Anyone considering participating in a clinical trial should discuss the matter with his or her physician. FARA does not endorse or recommend any particular studies.