Researchers at Vanderbilt University Medical Center are recruiting participants (male and female, children ages 7-17 years) with Friedreich’s Ataxia (FA) for a study to determine if there is a relationship between blood sugar abnormalities (risk of diabetes) and cardiac changes.
If your child is selected to participate in this study, your child may complete:
- blood testing
- oral glucose tolerance testing (with a non-FDA approved stable isotope product)
- placement of a continuous glucose monitor
- echocardiogram (ultrasound of the heart)
- dual-energy X-Ray absorptiometry (DXA, x-ray scan)
These procedures are planned during a 1-2-day study visit.
You and your child will be compensated for your time.
To learn more about participation in this study, please contact Dr. Jaclyn Tamaroff through email at jaclyn.tamaroff@vumc.org.
Click here to see the study flyer
Dr. Jaclyn Tamaroff is a young FA clinician scientist. Before joining Vanderbilt University Medical Center, Dr. Tamaroff received a postdoctoral fellowship award from FARA in 2020 to study glucose excursion in youth with FA without known diabetes at the Children’s Hospital of Philadelphia. She was one of 4 winners for best presentations of the FA Research Flash Talks series that took place in May 2021. Click here to watch her flash talk
Anyone considering participating in a clinical trial should discuss the matter with his or her physician. FARA does not endorse or recommend any particular studies.
