Description: This is a multicenter natural history study to provide a framework for facilitating therapeutic interventions; including the development of valid yet sensitive clinical measures crucial to outcome assessment of patients with Friedreich's Ataxia and supporting genetic modifier studies, biomarker studies, frataxin protein level assessments and a sample repository.
Key Criteria: Ages 4-80 years
Location: Multiple sites (US, Australia and Canada) in the Collaborative Clinical Research Network
ClinicalTrials.gov - https://clinicaltrials.gov/ct2/show/NCT03090789
Anyone considering participating in a clinical trial should discuss the matter with his or her physician. FARA does not endorse or recommend any particular studies.
