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Idebenone 2008 Phase 3 Follow-Up Study through CHOP and UCLA

The Children’s Hospital of Philadelphia (CHOP) is recruiting patients with Friedreich ataxia (FRDA) who previously participated in the 2008 phase 3 clinical trial of Idebenone for a new follow-up study. The purpose of the new study is to better understand how this specific group of patients have changed since the trial. There are no interventions or research visits in this study. The research team will mainly analyze previous medical records. If you (or your child) participated in the 2008 clinical trial of Idebenone, you are invited to contact Dr. Lynch or his study coordinator to learn more about this research project. This study is funded by the Friedreich Ataxia Research Alliance (FARA) and is taking place only at CHOP and the University of California Los Angeles (UCLA).

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Anyone considering participating in a clinical trial should discuss the matter with his or her physician. FARA does not endorse or recommend any particular studies.

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