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Instrumented Data Exchange for Ataxia (IDEA study)

Participants are needed for a research study to test body-worn sensors to measure movement during simple tests of coordination. The goal of this study is to evaluate progression and severity of ataxia.The outcomes of this study are critical for allowing remote data collection during future clinical trials.

Eligibility criteria include:

  • Be 12-30 years of age with FA diagnosed between ages 5-25
  • Be able to walk 10 feet independently
  • Be able to sit and stand unassisted for at least 30 seconds
Participants can be involved in an investigational drug trial and still be eligible for the IDEA study.

The study involves visits every 6 months over 2 years at a clinic site. Involvement in the study provides an Apple watch.

Compensation is available for travel to study sites.

Participants are needed at all study sites in Baltimore (Johns Hopkins), Boston (MGH), Chicago (University of Chicago), Los Angeles (UCLA) or Portland (Oregon Health & Science University).

For additional eligibility criteria, please contact the site study coordinator:

University of Chicago
Study coordinator: Hannah Casey
Phone: (773) 702-4610

Oregon Health & Sciences University
Study coordinator: Austin Prewitt

Johns Hopkins Medical Institute
Study coordinator: Michelle Joyce

Massachusetts General Hospital
Study coordinator: Brigitte Jacoby

Study coordinator: Aaron Fisher


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