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The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


Title Created Date Category
2015 FA Adventure Day Thursday, September 3, 2015 Activities & Events Blog
Brian Bianchi Monday, August 24, 2015 Meet the Community
Asad Rafi Friday, August 21, 2015 Meet the Community
Alyx Holliday Thursday, August 13, 2015 Meet the Community
FA Hangouts 8 Thursday, August 13, 2015 Hangouts
9th Annual Welsh Bash in the Backyard Thursday, August 13, 2015 Activities & Events Blog
Claxton Classic and Wing Party Wednesday, August 12, 2015 Activities & Events Blog
Alena and Alisa Wolfson Sunday, August 9, 2015 Meet the Community
FARA Represented in IRONMAN Lake Placid Tuesday, August 4, 2015 Team FARA Blog
Erin Pieper Monday, August 3, 2015 Meet the Community


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