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The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


Title Created Date Category
Mindaugas Tiscenka Tuesday, January 30, 2018 Meet the Community
Adam Griffies Monday, January 22, 2018 Meet the Community
Allie Kittel Monday, January 22, 2018 Meet the Community
FA Hangouts - January 2018 Thursday, January 18, 2018 Hangouts
Teen Hangouts - January 2018 Sunday, January 14, 2018 Hangouts
Megan McIntyre Tuesday, January 9, 2018 Meet the Community
FA Hangouts - December 2017 Friday, December 22, 2017 Hangouts
Rachel Manring Tuesday, December 19, 2017 Meet the Community
Jude Lally Wednesday, December 20, 2017 Meet the Community
Teen Hangouts - December 2017 Sunday, December 10, 2017 Hangouts


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