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About FARA
Mission & Organization
Financials
Leadership & Staff
Scientific Advisory Board
FARA Ambassador Program
Our Partners
Advocacy
Media
News & Press Releases
Video Resources
Upcoming Activities & Events
Contact
Research
Grant Program
Clinical Network & Trials
Scientific Conferences
Patient Registry
FARA Directed Projects
Research Pipeline
For Pharmaceutical Professionals
Research Resources
For Physicians
Institutional Supported Programs
Clinical Care Guidelines
Autopsy & Tissue Donation
Featured Scientists
Scientific News
Patient Focused Drug Development
Living with FA
What is FA?
Message for New Families
Cardiac Primer
Basics of Drug Development
Participation in Clinical Trials
Meet the Community
Patient Registry
Clinical Care
Clinical Care Guidelines
Family Support & Resources
Ataxian Athlete Initiative
Ways to Help
Ways to Donate
rideATAXIA
Team FARA
FARA Energy Ball
Grassroots Fundraising
Fundraising Tools
Planned Giving
Raising Awareness
Advocacy
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What is FA?
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Felicia DeRosa
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Felicia DeRosa
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Vice President - Fundraising & Communications
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The FARA Ambassador Program
Kyle Bryant
Jen Farmer
Felicia DeRosa
Ambassador
Erin Goerss
Jamie Young
Ann Musheno
David Woods
Jane Larkindale
FARA Ambassador Program
Elisabetta Soragni
Matt Popelka
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Rare Disease Day is February 28th, 2021!
Tuesday, February 16, 2021
News & Press Releases
NAF and FARA welcome the 117th Congress
Wednesday, February 10, 2021
News & Press Releases
A Community Statement from Novartis Gene Therapies
Tuesday, February 9, 2021
News & Press Releases
Monthly Update - February 2021
Monday, February 8, 2021
News & Press Releases
Monthly Update - January 2021
Monday, January 11, 2021
News & Press Releases
Webinar: FA Community Call to Action on January 5, 2021
Tuesday, December 29, 2020
News & Press Releases
Friedreich's Ataxia Center of Excellence at CHOP Awarded $1.275 Million to Advance Medical Research
Thursday, December 10, 2020
News & Press Releases
Monthly Update - December 2020
Monday, December 7, 2020
News & Press Releases
Central Nervous System Therapeutic Targets in Friedreich Ataxia
Wednesday, December 2, 2020
News & Press Releases
December 1st is Giving Tuesday!
Monday, November 30, 2020
News & Press Releases
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