Emma joined the FARA team in 2024, serving as the Advocacy Program Coordinator. In her role, she is responsible for coordinating advocacy efforts related to FARA’s mission. Within this, she works to educate patients and families on current advocacy initiatives and collaborates with FARA’s partners in advocacy to support efforts that drive investment in research and access to care for FA patients and families. Emma holds a B.A. in Biology and Political Science from Grinnell College and is currently working towards her MPH in Health Policy at the George Washington University Milken Institute School of Public Health.
ADVOCACY PROGRAM COORDINATOR