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Thank you for being a part of this year's FARA Energy Ball - #PartyAtYourHouse.
You tuned in from all over the country, and together we raised over $1 million in support of FA research! We are deeply grateful for your commitment to FARA's mission.

View the Thank You video above on the left - or the full Live Stream on the right. Click the "Impact" tab below to the timeline and read about the research milestones reached through your support. Thank you for bringing us ever closer to treatments for Friedreich's ataxia. 

Together We Will Cure FA!

With gratitude,

The Avery Family
and The FARA Team


Can't see this document? Click Here





Thank you considering a donation to support FARA. Personal and corporate donations can be designated in honor of a particular person or in support of the FARA Energy Ball.

Online

You can donate by credit card online by clicking the button below.

By Phone

You can donate over the phone by calling the FARA office at (484) 879 6160, (includes international donations). We will need your name, address and credit card information. The credit card user fee charged to FARA is 2.6% of your donation.

By Mail or Fax

You can download the Credit Card Authorization form and mail it in or fax it to (813) 387-8102 (includes international donations). You can send a check or money order to FARA at:

The FARA ENERGY BALL
PO Box 26454
Tampa, FL 33623-6454

The Friedreich's Ataxia Research Alliance (FARA) is a 501 (c) 3 non-profit organization.
Donations to FARA are tax deductible. FARA's tax ID number is 52-2122720.

 
 


Can't see this document? Click Here

Breakthrough Supporters

Capacity Builders

Technology Innnovator

Groundbreakers

Rick & Dixie Berman
Patrick Henry Creative Promotions
The Burrows Hill Foundation
Andrew & Lily Hupp
Jim & Patty Rusche

Balanced CFO & Account Services LLC
Brown & Brown Insurance
Steven Greenbam & Judy Genshaft
StrideBio Inc.
Louis and Kelly Varsames


Honorary Chair Council

Suzanne and Paul Avery, Chairman, FARA Board of Directors
Ron Bartek
, President, FARA
Charles J. Lockwood, M.D., M.H.C.M.  Senior Vice President, USF Health

Honorary Chairs

Janell and Steve Griggs, Tampa Bay Lightning CEO


Honorary Committee Members

Anna & Frank Alfano
Dorothy Alfonso
Alison Avery
Laurel Avery
Michael Barbaro
Lexi Barkett
Lori & Anthony Barkett
Debbie & Bob Basham
Steve Blair
Tom Bradley
James Buell
Sandy & Bob Callaghan
Sofia Parker Chang
Lauren Cooper
Trudy & John Cooper
Janey DePew
Tanya & Herman Fernandez
Sarah & Jason Foglia
Lori & Matt Hill
Amy & Kurt Hull
Mary & Paul Jacobs
Pamela & Chris Kelsch
Lisa & Vic Lafita
Dawn & Kevin Lambert
Susan McLaughlin
Pastor Jane McDonough
Kaye & Jim Pollard
Nancy & Brad Rex
Mary Ridgeway
Julie Robertson
Kathy & Doug Rothschild
Wendy Ryan
Susie Snowdon
Sandi & Chris Sullivan
Georgette & Chris Tsavoussis
Kelly & Lou Varsames
Bridget & Richard Verrecchia
Heidi & Bill Wright
Avery Lowry Zaritsky
Theresa Zesiewicz, MD FAAN
 

 


Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Most individuals have onset of symptoms of FA between the ages of 5 and 18 years. Adult or late onset FA is less common, <25% of diagnosed individuals, and can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.

For a summary of research progress made possible by proceeds from the Energy Ball, Click Here.
 
 
 
 

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