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Starting on Monday, February 25, 2019 Save to calendar
Categories: FARA Grassroots Event
Avonworth High School is pleased to announce a week-long fundraiser to create awareness for Friedreich's Ataxia (FA), a disease that 9th-grade freshman Jay Foster lives with. FA is a progressive, life-shortening, degenerative neuromuscular disease that causes loss of balance and coordination, heart failure, diabetes, loss of hearing, and slurred speech. FA is an inherited disease from both mother and father of the FA patient caused by a defective mitochondrial protein called frataxin. One in 50,000 people in the United States has Friedreich’s Ataxia. Currently, there is no cure for FA.
The week will be kicked off during a school assembly featuring Jay Foster. During the kick-off, Jay will be educating students about his condition. Throughout the duration of Rare Disease Week, students will have the opportunity to support their classmate by purchasing t-shirts, raffle tickets, playing games and buying bracelets. In the classroom students will also take a deeper look into the biology of FA, health education of rare disease, along with a screening of the award-winning documentary called “The Ataxian” starring FARA ambassador and FA patient, Kyle Bryant.