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Friedreich’s Ataxia Scientific Symposium

Friedreich’s Ataxia Scientific Symposium

On Friday, September 24, 2021 Save to calendar

Categories: Energy Ball

Register for the Symposium

Friedreich’s Ataxia Scientific Symposium
Hosted by the USF Health Ataxia Research Center


Sponsors and guests are welcome to attend this informative event to learn how their support has helped advance research in finding treatments for Friedreich’s ataxia.

Please Note:  While in the past we have enjoyed sharing a beverage and hors d'oeuvres with you at the symposium cocktail reception, out of an abundance of caution, this portion of the evening will not take place this year. All attendees will be required to mask at this event. Thank you for understanding.


Watch the Live Stream
Friday, Sept 24th  6:30pm ET






Agenda
6:00 - 6:30pm Registration
6:30 - 6:35pm Welcome
Charles J. Lockwood, MD, MHCM Senior Vice President, USF Health
Dean, Morsani College of Medicine
6:35 - 6:40pm An Introduction to the USF Ataxia Research Center Team & the Evening
Theresa Zesiewicz, MD Director USF Ataxia Research Center
6:45 - 7:10pm Emerging Therapies Panel
Moderated by Barbara Tate, Phd Chief Scientific Officer, FARA
A research panel including representatives from the following pharmaceutical companies with new development programs in FA:
  • Design Therapeutics
  • Exicure
  • PTC Therapeutics
7:15 - 7:40pm Clinical Stage Therapies Panel
Moderated by Jennifer Farmer Chief Executive Office, FARA
A research panel including representatives from the following pharmaceutical companies with clinical trials in FA:
  • Larimar Therapeutics
  • PTC Therapeutics
  • Reata Pharmaceuticals
7:45 - 8:10pm Living with FA Panel
Moderated by Clifton Gooch, MD USF Chair, Neurology Neuromuscular Medicine
  • Bridget Downing - Charleston, SC
  • Gavin Lambert - New Port Richey, FL
  • Christian Maugee - Gainesville, FL
  • Isabel Maugee - Fort Lauderdale, FL
8:10 - 8:15pm Closing Comments
Clifton Gooch, MD USF Chair, Neurology Neuromuscular Medicine



Covid-19 Information

COVID-19 is a constantly evolving situation. Each participant needs to evaluate their individual risk to attend FARA events based on the current circumstances. FARA does not make any individual endorsements and recommends that the participant discuss the matter with his or her physician where appropriate.

This event will be held in-person in accordance with the CDC Guidelines that are applicable at the time of the event.



 

2021-09-24 00:00:00
0000-09-22 20:00:00
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