Funded Grants

FARA Funded Research Grants

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General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Jan 2025

Rescuing frataxin expression by alternative splicing reprogramming with base editing

Alessandro Quattrone, PhD
University of Trento

General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Dec 2024

Application of RSwitch technology to improve Friedreich’s ataxia viral gene therapy safety and efficacy: control of FXN transgene expression through a small molecule regulation

Samuel Hasson, PhD
Rgenta Therapeutics, Inc

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Nov 2024

Quantifying sitting balance in children and adults with Friedreich ataxia – development of clinical and instrumented measures

Sarah Milne, PhD
Murdoch Children’s Research Institute

Bronya J. Keats Research Collaboration Award | Improving Clinical Outcomes

Grant Awarded | Nov 2024

Impact of cerebellar transcranial direct current stimulation on FA brain and cerebellar neurophysiological fingerprints and on clinical symptoms assessed by multimodal evaluations

Gilles Naeije, MD, PhD
Université Libre de Bruxelles, Belgium

Postdoctoral Fellowship | Mechanism or Pathway of Disease

Grant Awarded | Oct 2024

Understanding the Pathogenesis of Friedreich’s Ataxia by Single-Cell Integration of Gene Expression, Epigenetics and Connectivity in the Cerebellar Nuclei

Julian Cheron, MD, PhD
Johns Hopkins University

Postdoctoral Research Award | Gene & Stem Cell Therapy

Grant Awarded | Oct 2024

Enhancing Gene Therapy Delivery to the Brain via Human Blood-Brain Barrier Receptors

Changfan Lin, PhD
California Institute of Technology

Graduate Research Fellowship | Gene & Stem Cell Therapy

Grant Awarded | Sep 2024

Shortening GAA repeats in Friedreich’s Ataxia

David Berryman
University of Florida

Graduate Research Fellowship | Lead Candidates

Grant Awarded | Sep 2024

NRF2 and MAO-Ai therapy to improve cardiac health and prevent arrhythmias in Friedreich’s ataxia

Francisco Figueroa
University of California, Davis

Kyle Bryant Translational Research Award | Lead Candidates

Grant Awarded | Sep 2024

Developing the novel investigational mitochondrial therapeutic SBT-589 for Friedreich’s ataxia

Laura Kropp, PhD, MPH
Stealth BioTherapeutics

Keith Michael Andrus Cardiac Award | Cardiac Research

Grant Awarded | Sep 2024

Evaluating the cardioprotective effect of omaveloxolone on Friedreich ataxia heart disease

Shiang Lim, MPharm, PhD
St Vincent's Institute of Medical Research

Award for Innovative Mindset (AIM) | Gene & Stem Cell Therapy

Grant Awarded | Sep 2024

Deliverable in vitro transcribed mRNAs of Frataxin as a therapeutic approach for Friedreich ataxia

Lefkothea Papadopoulou, PhD
Aristotle University of Thessaloniki

Award for Innovative Mindset (AIM) | Outcome Measures & Biomarkers

Grant Awarded | Sep 2024

Deriving Functional MRI Equivalent Biomarkers in Friedreich Ataxia solely using Brain Structure Data

Susmita Saha, PhD
Monash University