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Community Conversations: The Power of Advocacy for FA Research

Join us on Thursday, April 3, at 12 p.m. ET for a conversation about the power of advocacy for FA research in the United States and around the world. In this session, learn more about what patient advocacy organizations are doing to create change and how acting locally can have an impact globally.

University of Florida FA Forum: Research, Wellness, and Community Conversations

Agenda coming soon! Light refreshments to be served.

rideATAXIA Gainesville 2025

Get ready for an amazing day at Depot Park! Whether you're up for a 4 or 16-mile ride on the scenic Gainesville-Hawthorne Trail or a 1-mile walk/ride within the park, there's something for everyone. After your ride, join us for a celebration of your incredible fundraising efforts to help find treatments and cures for FA.

Morrow Lacrosse Challenge

Teams will play lacrosse at bryn Mawr Shcool to benefit FARA

The 15th Pull for a Cure

Join FARA and Hunters & Liars for a day of clay shooting, auctions, dinner and fellowship in support of a great cause!

Burrows Hill Foundation Night to Fight FA

The Burrows Hill Foundation to Fight Friedreich's Ataxia is hosting A Night to Fight FA at the Akerson Tower in the Navy Marine Corps Memorial Stadium on April 12, 2025. This event will include dinner, open bar, and silent and live auctions.

11th Annual Tampa Bay Kids Triathlon

TBKT offers youth athletes the unique opportunity to swim, bike and run in and around Adventure Island. Ages 6-14 can participate. A portion of registration fees is donated to the Friedreich’s Ataxia Research Alliance (FARA).

FA Research Reception – Charlotte, NC

The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community in Charlotte, NC. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

BBQ Love Fest

BBQ Love Fest was born out of the love of Bar-B-Que, with renowned pitmasters from all over the country. Along with local Cook Teams competing for your vote as who is the best local pitmaster. Mix incredible music all day long and find out how Tampa does BBQ Love Fest. BBQ Love Fest is more than a good time, it’s a philanthropic event that supports FARA.

rideATAXIA Hometown Chico

Join us on May 10 for a pre-Mother's Day family-friendly ride!

rideATAXIA Hometown San Luis Obispo

Join us for a fun 5-mile ride or 1-mile walk on the Bob Jones Trail in beautiful Avila Beach and then stay for a celebration at Mulligan's (food and drink for purchase).

New Jersey Seaside Stride

The NJ Seaside Stride is a fun, family-oriented event hosted by NJ families working to raise awareness and research funds for FA. The event features a walk on the boardwalk, lunch, and gift auction.

Meet the Community: Julie Haffner

Meet the Community: Sam Dupre

Meet the Community: Sienna Helms

Giving Back Through Surgical Tissue Donation by Jake Juip

Meet the Community 2: A Closer Look – Matthew LaFleur

Meet The Community: Christin Haun

Living with FA, Leading in Research: FA Patient-Researchers Present at ICAR 2024

Meet The Community: Aidan LeCompte

Meet The Community: Daniel Huber

Meet The Community: Kendall Harvey

Meet the Community 2: A Closer Look — Alijana Shakya 

Meet the Community 2: A Closer Look – Alex Fielding