Research Receptions and Webinars
Each year, regional research receptions take place in different cities across the country. These in-person receptions highlight updates on the FA Drug Development Pipeline, clinical management of FA, insights on living with FA and more.
Speakers include FARA leadership, individuals with FA and caregivers, researchers and pharmaceutical partners working on FA, and clinicians with FA expertise.
Webinars are another way to learn about ongoing efforts in the FA community in the comfort of your own home. Tune in to learn about clinical trial updates from our pharmaceutical partners and advocacy and research initiatives led by FARA. Webinars occur every few months and are typically an hour long with time allotted for questions from the audience.