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About FARA's Research Program

 
FARA supports research through funding competitive grants across the spectrum from basic research through drug development and clinical research programs in Friedreich's Ataxia (FA). We promote collaboration among scientists, advocate for public-private partnerships and host open forums for leading scientists to share their insights and ideas to advance therapeutic development for FA.

FARA's Grant types, Deadlines, and Budget Limits are described in the table below. You can view special interest requests for proposals (RFPs) and other grant program updates and announcements here.

All investigators interested in FA-related research are invited to submit a Letter of Intent (LOI) through our submission portal. All proposed research must fall within FARA's Grant Program Priorities. For more information on how to apply for a FARA grant, click here.

Grant types, Deadlines, and Budget Limits
Grant Type Letter of Intent
(LOI) Deadline
Application Deadline Maximum Budget
(in US dollars)
 +  General Research Grant February 1 & July 15 April 1 & September 15 $125,000 per year
for 1 or 2 years
 +  Keith Michael Andrus
Cardiac Award
January 15 March 1 $150,000 per year
for 1 or 2 years
 +  Kyle Bryant Translational
Research Award
May 15 July 15 $250,000 per year
for 1 or 2 years
 +  Bronya J. Keats
International Research
Collaboration Award
May 15 July 15 $200,000 per year
for 1 or 2 years
 +  Postdoctoral
Research Award
February 1 & July 15 April 1 & September 15 $100,000 per year
for 1 or 2 years
 +  Postdoctoral
Fellowship
February 1 & July 15 April 1 & September 15 Trainee salary
up to 2 yrs
 +  Request for Proposals
and Ad-hoc Requests
FARA will issue requests for proposals (RFPs) on an ad-hoc basis.
 
 
 
Grant program updates and announcements

Request For Proposals: Pharmacodynamic Biomarker Development

FARA is issuing a request for proposal (RFP) to support clinical drug development programs in Friedreich’s ataxia (FRDA) by promoting the discovery of technologies to measure frataxin or surrogates of frataxin in inaccessible and disease relevant tissues.
This RFP supports the discovery and validation of non-invasive and quantitative methodologies to measure the following in FRDA affected tissues (brain, spinal cord or heart):

  • Frataxin protein levels
  • Biochemical activities dependent on/downstream of frataxin function that can be surrogates of frataxin in inaccessible tissues
Allowed budget will depend on stage and scope of research.
FARA will consider proof of concept and high-risk proposals, without preliminary data, provided they show a strong rationale for the proposed use and development of such biomarkers.
Informal inquiries regarding study relevance and interest to FARA are welcome and should be directed to grants@curefa.org. You can access the full RFP here.
Please submit a Letter of Intent here. The LOI submission deadline is 12/01/2021.


The FARA forum webinars​

The FARA Forum is a monthly webinar featuring investigators who have been awarded FARA grants. The webinar is open to FARA grant awardees and it is held on the second Tuesday of every month. For more information contact liz.soragni@curefa.org

September 14, 2021
  12:00 PM ET Ronald Crystal, Weill Cornell Medical College
  12:45 PM ET Shannon Boye, University of Florida

October 12, 2021
  12:00 PM ET Robert Wilson, Children's Hospital of Philadelphia
  12:45 PM ET Chad Heatwole, University of Rochester Medical Center

November 9, 2021
  12:00 PM ET Joseph Baur, University of Pennsylvania
  12:45 PM ET Shana McCormack, Children's Hospital of Philadelphia

COVID-19 emergency:
If you have been awarded a FARA grant, we will continue to request progress reports as they are due. If your work has been impacted by the COVID-19 emergency – for example if milestones could not be met or no work at all could be performed – we ask you to provide an explanation of how the COVID-19 emergency has impacted your research. We are also requesting that you inform FARA of what actions and measures are needed to assist you in restoring and reestablishing your research. We realize that there may be requests for re-budgeting and no-cost extensions and these decisions will be made on a case by case basis, FARA is implementing a maximum flexibility approach, to meet the needs of our research community and help its recovery.​

Please contact us at grants@curefa.org or liz.soragni@curefa.org, at any time if you have questions or concerns.

Grant program updates and announcements

View special interest RFPs and other grant program updates and announcements here.

Newly awarded grants

Lead Candidates​

Daniele Lettieri-Barbato, PhD - University of Rome Tor Vergata, Italy Testing the efficacy of dietary butyrate in ameliorating ataxic symptoms in Friedreich’s ataxia mouse models

Mechanism or Pathway of Disease​

Chen Liang, PhD - University of Rochester Pathophysiology of Muscle Dysfunction in Friedreich's Ataxia

Marco Carpenter, PhD - Children’s Hospital of Philadelphia Nuclear frataxin and the regulation of macrophage activation

Ricardo Mouro Pinto, PhD - Massachusetts General Hospital, Harvard Medical School & Caroline Benn, PhD - LoQus23 Therapeutics Testing whether somatic GAA expansions are a therapeutic target for FRDA

Improving Clinical Outcomes​

Gilles Naeije, MD, PhD - Hôpital Erasme, Université libre de Bruxelles, Belgium Dentato-Thalamo-Cortical tracts in Friedreich Ataxia: impact of its modulation on Friedreich Ataxia symptoms and brain functional architecture


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