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Non-FARA Funding Opportunities
 
Non-profit Organizations
National Ataxia Foundation (NAF) – NAF is a non-profit organization whose purpose is to provide programs and services for persons with ataxia and their families. These include several educational resources to connect and inform the greater ataxia community. As well, NAF supports scientific research efforts geared towards developing a cure for ataxia.

Muscular Dystrophy Association (MDA) – MDA is a non-profit organization dedicated to raising funds to support research efforts towards drug development and clinical trials for muscular dystrophy, amyotrophic lateral sclerosis or ALS, and related disorders. MDA also provides services and support to families with affected individuals in the form of medical equipment, support groups and educational seminars.

Ataxia UK – Ataxia UK is a charity in the United Kingdom dedicated to supporting individuals with all types of ataxia. This support includes raising funds for medical research to develop treatments and cures; raising awareness about the needs of individuals with ataxia in the greater public community; and providing advice and resources for individuals and families affected by ataxia.

The Friedreich Ataxia Research Association (fara) Australia – fara Australia is a not for profit organization that raises funds through corporate partnerships and community fundraising in Australia and New Zealand to support biomedical research into treatments and a cure for FA.

American Heart Association (AHA) – Founded in 1924, the AHA is the nation’s largest and oldest organization dedicated to developing treatments and cures against heart disease and stroke. To combat these cardiac diseases, the AHA provides funding for biomedical research, advocates for public health policies and resources, and provides education training and tools to the greater community about heart health. Several funding opportunities are available through the AHA.
 
 
 
U.S. Government Agencies
National Institutes of Health
A principal concern of the NIH is to invest wisely the tax dollars entrusted to it for the support and conduct of biomedical research. This link provides grants and funding opportunities offered by NIH.

NIH is comprised of about 25 separate Institutes and Centers. The Institutes listed below cover one or more symptoms associated with Friedreich's ataxia. You can click on a link to a selected institute to learn more about grant funding and areas of program interest.

Neurological Disorders National Institute for Neurological Disorders and Stroke (NINDS) .
The NIH Institute with primary oversight of biomedical research on FA.
Diabetes National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Hypertrophic Cardiomyopathy National Heart, Lung and Blood Institute (NHLBI)
Genetics National Human Genome Research Institute (NHGRI)
Antioxidants National Institute on Aging
Orthopedics National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Child Development National Institute of Child and Human Development (NICHD)
Hearing Impairment National Institute on Deafness & Other Communication Disorders (NIDCD)
NIH RePORTER NIH RePORTER (Research Portfolio Online Reporting Tools) A searchable repository of NIH-funded biomedical research projects, as well as publications and patents resulting from NIH funding.

 
 
 
 

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Grant program updates and announcements

View special interest RFPs and other grant program updates and announcements here.

Newly awarded grants

Gene & Stem Cell Therapy​

Joseph Nabhan, PhD - Vesigen Therapeutics, Cambridge (MA)
Evaluation of ARMMs-mediated delivery of Cas9 protein complexed with gRNAs as a non-viral disease-modifying strategy for Friedreich’s ataxia

Changfan Lin, PhD - Caltech
Engineering adeno-associated viral vectors to evade immune responses

Mechanism or Pathway of Disease​

Pei-Yu Chen, PhD - Yale University
TGFβ signaling activity as disease biomarkers and therapeutic targets in Friedreich’s Ataxia

Sarah Robinson-Thiewes, PhD - St. Jude Children’s Research Hospital
Illuminating how SynGRs liberate gene expression from heterochromatin

Anna Stepanova, PhD - Weill Cornell Medical College
Calcium communication among intracellular compartments in FA patient-derived cells

Outcome Measures & Biomarkers

David Lynch, MD, PhD, Wiliam Gaetz, PhD & Timothy Roberts, PhD - Children’s Hospital of Philadelphia
Imaging of glutathione and GABA in the brain as biomarkers of Friedreich Ataxia

Louise Corben, PhD - Murdoch Children’s Research Institute
Measuring ataxia in children with Friedreich ataxia

Cardiac Research

Laura Kropp, PhD, MPH - Stealth BioTherapeutics
Advancing novel mitochondrial therapies for FA cardiomyopathy: a pragmatic collaboration to move new therapies forward


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