Jennifer Farmer is the Chief Executive Officer of the Friedreich’s Ataxia Research Alliance. Jennifer has a Master’s degree in Genetic Counseling and prior to joining FARA she worked at the University of Pennsylvania and Children’s Hospital of Philadelphia. As a genetic counselor, Jennifer developed a special interest in neurogenetic conditions and then went on to establish and coordinate clinical and research programs for individuals and families diagnosed with Friedreich Ataxia (FA) and other neurodegenerative diseases. Having established relationships with the families who founded FARA and sharing in their vision to treat and cure FA she joined the organization full time in 2006. Jennifer has led FARA’s efforts to establish clinical research infrastructure and clinical trial readiness, grown the research grant program from funding <1M annually to >6M annually, led efforts to engage bio-pharma industry in FA drug discovery and development, and ensured highly efficient and transparent organizational growth and development. In her current role at FARA as CEO, she helps to carry out the strategic mission of the organization through leading FARA’s research and partnership initiatives.
Chief Executive Officer