Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Kati Hook

KatiName: Kati Hook

Age: 35 years old

Where do you call home? I live in NW Indiana on my parent's farm. I have an apartment in the barn.

Education: I have an associates degree in Occupational Therapy. Through my internships, I learned tips and tricks that have helped me to maintain my independence.

What is your relationship status? Who do you live with? I am single, I live with my Frenchie, Mabel who keeps me very busy.

Add a comment
Read more: Kati Hook

Rhea Hoffman

Rhea HoffmanName – Rhea Hoffman

Age – 31

Where do you call home? Milwaukee, WI

Education – High School Diploma and a few years of college for Criminal Justice, Fire Science & Psychology.

What is your relationship status? Single, no kids. Live with my older brother & sister-in-law.

What is a typical day for you? Work full time, commute time is about 30 mins each way. We always have a lot of family gatherings during the weekends.

Add a comment
Read more: Rhea Hoffman

Kaity Ratcliff

Kaity 2Name: Kaity Ratcliff

Age: 17

Where do you call home? Prairieville, Louisiana

What is your current goal you have with education? I plan to graduate college to become an engineer.

Who do you live with? My parents and my older sister.

What's a typical day for you? I go to school, watch YouTube, listen to music, and do homework.

How long have you known you are living with FA? I was diagnosed 2 years ago.

Add a comment
Read more: Kaity Ratcliff

Wes Gates

Wes GatesName: Robert W. Gates (Wes)

Age: 31

Where do you call home? Choctaw, OK

Education: degree Bachelor of Art in Multi-Disciplinary Studies from the University of Oklahoma

Tell us about your family: I live with my parents and have never been married.

How long have you known you are living with FA? I was diagnosed at age 13 by Walter Reed Army Hospital in Washington DC when we lived there.

Are there any others with FA in your family? No

Add a comment
Read more: Wes Gates

Marianne Hakim

MarianneName: Marianne Hakim

Age: 32

Where do you call home? Beirut, Lebanon

Education: B.A in advertising & marketing and Masters in media studies- My thesis which is the backbone of Friedreich Ataxia Lebanese Association (FALA) — an NGO I established — gave me the opportunity to meet and connect with people, who are affected, like me, by FA in my country. The main objectives are to spread awareness about the benefits of the therapies available to medical experts as well, connect people with FA to doctors and therapists and offer them support, orientation, and care, last but not least encourage inclusion in public places, educational institutions, and workplace.

Add a comment
Read more: Marianne Hakim
Page 1 of 28

SHARE

FacebookTwitterLinkedInYoutube

 

Archived in
  the Ambassador Blog