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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Susan Allen Carter

Susan Carter Profile PicName: Susan Allen Carter

Age: 45

Where do you call home? Northeast Louisiana

Education [degree(s)]: I currently have a Bachelor's degree in Social Work and Master's in Education. I also have a degree in Community Counseling. ALL people have struggles and ALL people have things for which to be thankful. In essence, that is my job as a counselor.

Who do you live with? I'm recently divorced. I live with my 15-year-old daughter and two cats.

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John Day

John DayName: John Day

Age: I am 50 years old.

Where do you call home? I call southeastern Indiana my home. I am about 30 minutes away from Cincinnati, Ohio.

Education degree(s): I had some mechanical engineering courses in college.

Who do you live with? I am currently single and set in my ways. I have no children, and I live by myself. I have lived on my own since I was 18 years old.

What's a typical day for you? My typical routine throughout the day varies, but I always make sure to exercise. Just managing things around the house and errands keep me busy.

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Marc Mailloux

Marc 4Name: Marc Mailloux

Age: 51

Where do you call home? Cohoes, NY

Education: 12th grade

Who do you live with? Do you have children? Single and I have one daughter.

What's a typical day for you? I've worked part-time at Wal-Mart for 18 years.

How long have you known you are living with FA? Diagnosed March 18th, 1985, just after turning 17.

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Angelo Bonarrigo Jr.

AngeloName: Angelo Bonarrigo Jr.

Age: 49

Where do you call home? Palm Bay, FL

Education: BS-Accounting, University of Central FL, 1991

Who do you live with? Married 17yrs with 3 children none w/FA

What's a typical day for you? Work full-time M-F, weekends, yard work, church, and soccer games for the kids, thrift shopping, etc.

How long have you known you are living with FA? I was correctly diagnosed in 2003 after being incorrectly diagnosed in 2000 with Cerebellum Atrophy.

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Kelley White

Kelley Name: Kelley White

Age: 44

Where do you call home? Nashville, Tennessee

Education degree(s): After I graduated high school, I went to the Tennessee Rehabilitation Center. It's a school for people with different disabilities, anywhere from developmental to physical. I lived there for 10 months (went home some weekends). I earned a clerk/typist certificate. Then I went to work at Volunteer State Community College for almost 17 years.

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