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Holly Franz

HollyFranz1Name: Holly Franz

Age: 22

Where do you call home? Bedford, New Hampshire

Education (degree(s): BS in Marketing from Southern New Hampshire University

How long have you known you are living with FA? After two years of being misdiagnosed, I was officially diagnosed with FA at age 11. 

When FA gets you down, what do you think/do to feel better? I try to surround myself with great people. I remind myself how far I have succeeded in life, with FA as an obstacle, and think that I may have been diagnosed with FA, because I could handle it.

HollyFranz2What is one way living with FA has POSITIVELY affected your life? The things I have been able to do and people I have met, well that’s two things. Living with FA has led me down paths I would have never even known of and for that, I am forever grateful.

What is a favorite motivational quote of yours? “Everything happens for good reason”.

What is the best advice YOU could give to a person who has been newly diagnosed with FA? Always remember that obstacles (the symptoms of FA or the use of a walker/wheelchair) can often become a stepping stones to greater achievements and successes.

We are STRONGER TOGETHER! New Meet the Community interviews; Mondays on the Ambassador blog!


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


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