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FARAFARA Cure FA

Neal Ramer

Neal RamerName: Neal Ramer

Age: 41

Where do you call home? Tippecanoe, IN

Education degree(s): 8th grade

Do you have children? No

What's a typical day for you? Typically, I sleep, eat, take care of my dogs, eat, sleep... rinse, repeat. I am a dog breeder.

How long have you known you are living with FA? (When and how were you diagnosed?) I was diagnosed at 18 with Charcot-Marie Tooth (CMT) because there was no genetic test. Then when I was 23, I was correctly diagnosed with FA by a blood test.

Are there any others with FA in your family? My older brother has FA.

Neal collageDescribe your transition from walking to walker/wheelchair. I used forearm crutches for about 5 years. Now I am in a wheelchair.

What do you like to do to stay active and what type of exercises work for you to stay strong? I take care of dogs.

Do you have any hobbies or special interests? Netflix

When FA gets you down, what do you think/do to feel better? Listening to music makes me better.

What is the best advice YOU could give to a person who has been newly diagnosed with FA? I would say, keep on living your life.

MaryNadonScott sig 17

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