Name: Christopher Robin Brian Halstead

Age: 19

Where do you call home? Douglas, Manitoba

Who do you live with? My grandpa and grandma

How long have you known you are living with FA? I think I was 15 years old, maybe 16.

Describe your transition from walking to walker/wheelchair: I now use a walker and I have a wheelchair for long walks if I need. I also got two chair lifts added to my home, one for my room and one for my front door.

Name: Andres De Vita

Age: I’m 30 years old.

Where do you call home? I live in Buenos Aires, Argentina.

Who do you live with? I live with my mom, my dad, and my sister.

What's a typical day for you? Work at home making physical activities (ex. Kinesiology, Crossfit)

How long have you known you are living with FA? It all started when I was 7 years old. In a gym class, the professor ordered us to jog. That's when he realized that I was tripping too much. After long years of failed diagnoses and resorting to many doctors, at the age of 14, I was diagnosed.

Name: Fredson Nascimento de Santana

Age: 43

Where do you call home? I was born and live in Antônio Gonçalves, a small town in the countryside of Bahia State, in the Northeast of Brazil.

Education: I have a degree as a teacher’s assistant.

Who do you live with? I am single and live with my parents.

What is a typical day for you? After I finish breakfast I open my little computer store. I work in my parents garage doing personal computer maintenance.

Name: Chrysanthi Zouva

Age: 37

Where do you call home? Athens, Greece

Education (degree(s): My academic journey began with a 4-years bachelor’s degree in Geology and Geoenvironment from the National and Kapodistrian University of Athens. Due to my scientific curiosity, I continued my studies in an MSc and afterward at a Ph.D. level related to Environment and Development, linked to the Spatial Decision Support System at the National and Technical University of Athens. The range of my studies, combined with my expertise and passion will give me the opportunity to move a step forward in the research of FA in my country.

What's a typical day for you? Every morning I start my day with therapeutic swimming or gym or training with my handbike. Later I usually stay at home, cooking or working at my laptop.

How long have you known you are living with FA? I was diagnosed at the age of 20, certified by a DNA test, but my first symptoms began at the age of 17, after instability issues.

Are there any others with FA in your family? No, just me...