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FARA
Cure FA
Meet the CommunityYou are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below. New Meet the Community interviews are posted every Monday, so be sure to visit often. Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.
Name: Kelley White
Age: 44
Where do you call home? Nashville, Tennessee
Education degree(s): After I graduated high school, I went to the Tennessee Rehabilitation Center. It's a school for people with different disabilities, anywhere from developmental to physical. I lived there for 10 months (went home some weekends). I earned a clerk/typist certificate. Then I went to work at Volunteer State Community College for almost 17 years.
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Name: Candace Honeycutt
Age: 43
Where do you call home? Grinnell, IA
Education (degree(s): I graduated high school in 1994 and attended college for 1 year. For the past 3 years, I've taken some classes online and in person. I hope to earn a BA eventually.
What is your relationship status? I am married to my husband of 22 years. We have 2 sons, ages 20 and 18. The 18-year-old is graduating this year and preparing for college in the fall. The 20-year-old attends college about 2 hours away.
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Name: Andrew Marshall
Age: 37
Where do you call home? Johannesburg, South Africa.
What is your relationship status? I am not married.
What's a typical day for you? My days vary. Typically, I focus on a gym routine or marketing my memoir.
How long have you known you are living with FA? I was 16 when I was finally diagnosed after going to numerous professors and doctors.
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Name: Laura Rose Ferrarone
Age: 29
Where do you call home? Rochester, NY
Who do you live with? I live alone in my own home, rented from my parents. I have help 24X7.
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Name: Kati Hook
Age: 35 years old
Where do you call home? I live in NW Indiana on my parent's farm. I have an apartment in the barn.
Education: I have an associates degree in Occupational Therapy. Through my internships, I learned tips and tricks that have helped me to maintain my independence.
What is your relationship status? Who do you live with? I am single, I live with my Frenchie, Mabel who keeps me very busy.
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