Name: Deniz Nascimento de Santana

Age: 38

Where do you call home? I was born and live in Antônio Gonçalves, a small town in the countryside of Bahia State, in the Northeast of Brazil.

Education: I have a degree as a teacher’s assistant, and I have finished high school.

Who do you live with? I am divorced and live with my 15 year old daughter

What is a typical day for you? This is my daily routine: twice a week I have physical therapy or pilates (I alternate every two months) + acupuncture, once a week I have a speech therapist, once a week I talk to my psychologist, on Sundays i go to church and the spare time i spend at my little store. It helps me pay the bills and keeps my mind busy doing what I like. At night, I watch a little bit of TV before going to bed. Well, I have to change a little bit what I said. This was my routine before the pandemic. Pilates, psychologist and church are now virtual. I went through the last 8 months without therapy and some of my business clients have become virtual.

Name: Mary Bircher

Age: 31

Where do you call home? Durham, North Carolina

Education (degree(s): I have a BA in English from the University of North Carolina at Greensboro and an MA in Victorian literature from the University of London.

Who do you live with? I live with my boyfriend who I've been dating since high school! We also have a corgi named Finn.

What's a typical day for you? Well I am a pretty boring person! I sleep late and then I find whatever needs to be done around the house. I'll play some video games, and I really like to read. I do exercises and twice a week I have PT. My boyfriend's job allows him to be home most of the time so that's really helpful.

Name: Christopher Robin Brian Halstead

Age: 19

Where do you call home? Douglas, Manitoba

Who do you live with? My grandpa and grandma

How long have you known you are living with FA? I think I was 15 years old, maybe 16.

Describe your transition from walking to walker/wheelchair: I now use a walker and I have a wheelchair for long walks if I need. I also got two chair lifts added to my home, one for my room and one for my front door.

Name: Andres De Vita

Age: I’m 30 years old.

Where do you call home? I live in Buenos Aires, Argentina.

Who do you live with? I live with my mom, my dad, and my sister.

What's a typical day for you? Work at home making physical activities (ex. Kinesiology, Crossfit)

How long have you known you are living with FA? It all started when I was 7 years old. In a gym class, the professor ordered us to jog. That's when he realized that I was tripping too much. After long years of failed diagnoses and resorting to many doctors, at the age of 14, I was diagnosed.