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Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Jason Drake

Jason DrakeName: Jason Drake

Age: 26

Where do you call home? Franklin, Virginia

Relationship status? Do you have children? No (but quite a few nephews!)

Occupation/Employment: Farmer

Education: High School and some college.

How long have you been living (or known you are living) with Friedreich's Ataxia? 10 years; I was diagnosed in 2004 through blood work.

Do you have any known family history of Friedreich's Ataxia or similar symptoms? No.

Describe your transition from walking to walker/wheelchair. I was walking independently until I was 21; then I started using a walker to help me get around for a few years, and now I use a wheelchair about 80% of the time.

Christin Haun

Name: Christin Haun

Age: 43

Where do you call home? Broken Arrow, Oklahoma

Relationship status? Do you have children? Divorced, no children.

Occupation/Employment: I do not work anymore.

Education: AA in Psychology and BS in Special Education. Alma Mater: Northeastern State University in Tahlequah, OKlahoma.

How long have you been living (or known you are living) with Friedreich's Ataxia? 29 years diagnosed with FA. I was diagnosed initially by my orthopedist that recognized the correlation between scoliosis and unusual gait patterns. His hunch was confirmed by a neurologist.

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