Name: AJ Perez
Where do you call home? Austin, Texas (gotta have that BBQ haha)
Education: I have my associates degree, I’ve always chosen the work experience.
I do have a tremendous amount of respect for those who have their degree, especially those who climb all obstacles and conquer the difficulties that stand in their way. I’m in the process of creating an opportunity for people with FA to have their shining moment, bring awareness to FA, and funds to families in need of assistance due to FA. I use to be so mad at FA and I still am, but I’m also happy because it helped guide me to my purpose. I want to help those affected by FA, be that older brother or shoulder for those to lean on... Know this, I’m fighting with you and I will always be in your corner even after they find a cure, I’m here for you!
Tell us about your family: I am married, and have been married for 12 years. FA has definitely implemented itself into our marriage. At times it makes me feel like more of a patient than a partner. I also have two kids, a daughter who is 11, and a son who is 7. They are both so active, and keep me going.
What's a typical day for you? (deep breath haha) Monday - Friday I TRY to get up at 4:30am to go to the gym 3x’s a week (if you don’t use it you lose it) I have a full time job working with special education kids at an elementary school. Then I come home, usually fall asleep and go to my second job from 6-10:30. On the weekends we go go go, usually kids soccer games, or family adventures. We like to go see and do things. FA definitely shows its face but I CAN'T let it win! My legs and lower body absolutely feel the effects; when they weaken, I stumble, often catching myself from falling (if I’m lucky) on nearby walls.