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Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Ana Clara Andrade

Sandra Johnson Name: Ana Clara Andrade

Age: 14

Where do you call home? I live in Heliopolis, in the northeast of the State of Bahia, Brazil

Education/Career: I am a ninth grader and my dream is to be an interior designer.

What’s a typical day for you? My mornings are reserved for my school classes. In the afternoon I do exercises. In my free time I enjoy painting and playing with my toys and games.

Marian Soto Coronado

marian-soto-coronado Name: Marian Soto Coronado

Age: 50

Where do you call home? Oliva de la Frontera (Badajoz), Spain.

Education/Career: I’m a school graduate and I have an administrative assistant degree. Currently, I am a housewife.

Who do you live with? With my husband and my two children.

What’s a typical day for you? I get up and have breakfast, I gather everything I can and I put on the washing machine, then I make lunch… In the afternoon, I do gymnastics and then a little pool workout, some days I spend some time with my friends at my house and the time I have left, I read or watch TV etc. I try to be with my children as long as I can between one thing and another.

Josué Lira

Josue-Lira Name: Josué Lira

Age: 22

Where do you call home? I live in a rural area around the city of Sao Caetano, in the State of Pernambuco, Brazil.

Education/Career: I finished high school.

What’s a typical day for you? I spend my days taking care of the cattle on my parent’s farm. I start my day having breakfast and watch my mother milk the goats. After the milk is collected, I help her to take the herd back to the pasture and sometimes my nephew helps us. The next round is to feed the chickens and collect their eggs. In the afternoons I walk the farm with my dog and do some weeding. This is an everyday job and essential to keep the pasture productive.

Sajmir Pjetri

Sajmir-Pjetri Name: Sajmir Pjetri

Age: 29

Where do you call home? Burrel, Albania

Education/Career: I finished high school

Who do you live with? I live with my parents and brother. I have 3 brothers and 1 sister. 2 brothers and my sister live abroad. They are all married and blessed with children. I am a lucky and happy uncle.

What’s a typical day for you? I try to do daily exercises, read books, watch movies and play chess.

Max Corrigan

max-corrigan Name: Max Corrigan

Age: 19

Where do you call home? I am from Bristol in the U.K.

Education/Career: I have my math GCSE and I am working towards a Media degree, so I can work at home.

Who do you live with? I live with my mum, stepdad, and sister, but I would love to move out. I just need to be in the right situation first.

What’s a typical day for you? I wake up at about 6am and workout for a little while, then I do college work, edit or game in the afternoon, and finally shower late as I feel most confident with my walking ability.

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