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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Michael Pelletier

Michael mtcName: Michael S Pelletier

Age: 57

Where do you call home? New Haven, CT

Education: GED

What is your relationship status? I am Divorced. I was married for 15 years and have 3 children. I currently have a girlfriend. I live alone. Help comes for me in the morning.

What's a typical day for you? I wake up around 11:00-12:00. Then I eat breakfast and exercise with weights. Help comes and cleans the house and I go for a walk. I am looking for a new apartment. I am usually up until 1:20 am.

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Johnna Wheeler

JohnnaName: Johnna Wheeler

Age: 30

Where do you call home? New Orleans

Education: I have my high school diploma, and I'm working towards going to college for Physics and Astronomy.

What is your relationship status? Do you have children? Single and happy! No kids, but I have 4 nephews that I love like my own!

How long have you known you are living with FA? I was diagnosed when I was 7. My teacher at the time noticed that I had balance issues, and suggested that my parents take me to see a neurologist.

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Gabe Ford

GabeName: Gabrielle "Gabe" Ford

Age: I am 38 years wise

Where do you call home? I currently call Canandaigua, NY home but that can change. I'm originally from Michigan for most of my life so far. I lived in Florida for 4 years and Indiana for 5 months.

Education: I graduated from high school and went to a travel academy to become a travel agent. I am a certified travel agent but chose not to work in the public due to my condition and fears of the public eye. Now being more mature and wiser compared to back then, I'm not as concerned with the opinions of the public eye. Life with FA has been the best teacher!

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Priscilla Weatherford

Priscilla 5Name: Priscilla Weatherford

Age: 34

Where do you call home? Abaco, Bahamas

Education: High school degree and an Advanced Biblical studies certificate from Liberty University

What is your relationship status? Do you have children? No kids; live with parents.

How long have you known you are living with FA? When I was around seven years old, my thirteen-year-old sister was diagnosed with FA and that same doctor who diagnosed her suspected from my gait that I would develop FA as well. At around the age of eleven, I began losing my balance and noticing difficulties with coordination, etc. About a decade ago, my diagnosis was confirmed with DNA testing.

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The Walker Family

Kate 2Name: Kate Walker

Age: 15

Where do you call home? North Louisiana

Education: 10th grade

Who do you live with? I live with my parents, Rachel and Jason, and my dog, Ellie Mae.

What's a typical day for you? Since it is summer right now, my routine is different than it would be during the school year. I usually wake up around 9 or earlier and lay in bed for a while. I work on my website or my YouTube videos during the day. I try to find time to do some sort of exercises. Some days I spend time with friends, ride my trike, or watch TV. It depends on how tired I am that day. There are days I don't get out of bed much, but I try to keep myself motivated. 

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