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FARA
Cure FA
Meet the CommunityYou are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below. New Meet the Community interviews are posted every Monday, so be sure to visit often. Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.
Name: Damaris Eunice Seballes
Age: 21
Where do you call home? Texas
Education degree(s): High School Diploma & some college
Who do you live with? I am currently in a relationship, which we are taking serious. I do not have children nor do I really want any. DON'T GET ME WRONG, I adore kids, but I don't exactly see being a mom in my future. As of now, I live with my mother and siblings. Although, hopefully in the near future I'll be able to decorate my own house.
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Name: Susan Allen Carter
Age: 45
Where do you call home? Northeast Louisiana
Education [degree(s)]: I currently have a Bachelor's degree in Social Work and Master's in Education. I also have a degree in Community Counseling. ALL people have struggles and ALL people have things for which to be thankful. In essence, that is my job as a counselor.
Who do you live with? I'm recently divorced. I live with my 15-year-old daughter and two cats.
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Name: John Day
Age: I am 50 years old.
Where do you call home? I call southeastern Indiana my home. I am about 30 minutes away from Cincinnati, Ohio.
Education degree(s): I had some mechanical engineering courses in college.
Who do you live with? I am currently single and set in my ways. I have no children, and I live by myself. I have lived on my own since I was 18 years old.
What's a typical day for you? My typical routine throughout the day varies, but I always make sure to exercise. Just managing things around the house and errands keep me busy.
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Name: Marc Mailloux
Age: 51
Where do you call home? Cohoes, NY
Education: 12th grade
Who do you live with? Do you have children? Single and I have one daughter.
What's a typical day for you? I've worked part-time at Wal-Mart for 18 years.
How long have you known you are living with FA? Diagnosed March 18th, 1985, just after turning 17.
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Name: Angelo Bonarrigo Jr.
Age: 49
Where do you call home? Palm Bay, FL
Education: BS-Accounting, University of Central FL, 1991
Who do you live with? Married 17yrs with 3 children none w/FA
What's a typical day for you? Work full-time M-F, weekends, yard work, church, and soccer games for the kids, thrift shopping, etc.
How long have you known you are living with FA? I was correctly diagnosed in 2003 after being incorrectly diagnosed in 2000 with Cerebellum Atrophy.
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