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Friedreich's Ataxia Research Alliance


Main Office:   533 W Uwchlan Ave
Downingtown, PA 19335 USA
Phone: (484) 879-6160
Fax: (484) 872-1402
Virginia Office:   PO Box 1537
Springfield, VA 22151 USA

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Your connection to the Friedreich's Ataxia Research Alliance

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You will receive FARA's Monthly Update emails. The Monthly Update is a digest of FARA news including enrolling clinical trials, research grants funded, advocacy initatives, and upcoming events.


FARA feels a strong responsibility to be good stewards of the funds entrusted to us. Charity Navigator, America's largest and most influential charity rater on financial health, accountability and transparency and results reporting, has rated FARA with their highest rating of 4 stars for 10 years. Less than 2% of charities evaluated have maintained at least 10 consecutive 4 star ratings.

FARA's most recent financial documents and donor policies can be accessed below.

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View the 2018 Annual Report

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+ Donor Bill of Rights
+ Donor Privacy Policy
+ Corporate Relations Policy
+ State Nonprofit Disclosures

FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for treatments and a cure.

The Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.

FARA Ambassador Program Mission Statement:

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:

This is where I would expect a link to the Ambassadors Biographies. This could be set-up as a category blog layout in this spot also. Since each biography is actually a categorized article, this would be the preferred solution from my end.

Monthly Updates

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