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FARA Advocacy Newsletter - June/July 2021


The 10th Annual Rare Disease Week started July 14, and runs through July 22! It is virtual this year, so regardless of where you are, you can do it! It is a great opportunity to learn about pending US legislation impacting rare disease, gain some advocacy training and, if US based, speak directly to your Members of Congress &/or their staff.

There is still time for you to register and tune in for many of the excellent programs offered during Rare Disease Week.

If you are registering now...

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