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FARA leads the Neuromuscular Community in Important FDA Recommendation

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News & Press Archives

2020 (26)
- November (3)
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  - â¢ Monthly Update - October 2020
- September (5)
  - â¢ New ICD-10-CM Diagnosis Code G11.11â¦
  - â¢ Global, multi-stakeholder, consortiâ¦
  - â¢ rideATAXIA Global Challenge
  - â¢ Award for Innovative Mindset
  - â¢ Monthly Update - August 2020
- August (2)
  - â¢ FARA Job Posting - Communications Câ¦
  - â¢ Monthly Update - July 2020
- July (5)
  - â¢ NAF and FARA will be holding their â¦
  - â¢ Third Party Data Breach
  - â¢ Strong Partnership Funds the 2020 Aâ¦
  - â¢ PTC Therapeutics will be hosting anâ¦
  - â¢ Monthly Update - June 2020
- June (1)
  - â¢ FA Research Update
- May (4)
  - â¢ Monthly Update - May 2020
  - â¢ FARA hires Barbara Tate, PhD as FARâ¦
  - â¢ Help FARA Earn a $20,000 Matching Gâ¦
  - â¢ FARA is excited to launch our FA Reâ¦
- April (2)
  - â¢ Monthly Update - April 2020
  - â¢ Why the FA Global Patient Registry â¦
- March (2)
  - â¢ rideATAXIA Dallas 2020 - Thank you!â¦
  - â¢ A Note to Our Community Regarding Câ¦
- January (1)
  - â¢ FARA job posting - rideATAXIA Eventâ¦
2019 (10)
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  - â¢ The Friedreichâs Ataxia Research â¦
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  - â¢ Reata Announces Positive Topline Reâ¦
- September (1)
  - â¢ 12th Annual Friedreich's Ataxia Symâ¦
- July (2)
  - â¢ Kyle Bryant Living Life Beyond Circâ¦
  - â¢ Bike ride along I&M Canal in Channaâ¦
- May (1)
  - â¢ From patient to Researcher
- January (1)
  - â¢ Advocacy 101: Jump In
2018 (20)
- October (5)
- September (2)
  - â¢ The 9th Annual FARA 5K is just arouâ¦
  - â¢ US Open stars embrace chance to givâ¦
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  - â¢ Invite and They Just Might Come!
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  - â¢ Football team makes classmate's wisâ¦
  - â¢ Howell High School's Senior Survivoâ¦
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  - â¢ Lend Us Some Muscle! 2018
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  - â¢ Life Is About How We React - Rare Dâ¦
- January (2)
  - â¢ THE ATAXIAN Kicks Off Rare Disease â¦
  - â¢ You May Be Going to the Super Bowl!
2017 (17)
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  - â¢ FARA Job Posting: Communications Coâ¦
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  - â¢ Girl tells author of âWonderâ hâ¦
  - â¢ Friedreichâs Ataxia âVoice of tâ¦
- August (1)
  - â¢ 10th Annual Friedreichâs Ataxia Sâ¦
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  - â¢ FARA to Ring The Nasdaq Stock Markeâ¦
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  - â¢ JOIN AN UPCOMING LIVE WEBINAR TO LEâ¦
  - â¢ Rare Disease Week on Capital Hill, â¦
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  - â¢ Family, neighbors unite to fight geâ¦
2016 (29)
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  - â¢ FARA Joins Nasdaqâs Live Broadcasâ¦
- August (1)
  - â¢ 9th annual FA Symposium - Oct 17th,â¦
- July (3)
- June (7)
- May (4)
  - â¢ St. Catherineâs Academy raises moâ¦
  - â¢ FARA receives 2016 NORD Rare Impactâ¦
  - â¢ DOING AS MUCH AS A MOM CAN
  - â¢ TRAIN - Innovator Spotlight on the â¦
- April (3)
- March (2)
  - â¢ Anna's Army Movie Star Masquerade Bâ¦
  - â¢ NORD Announces 2016 Rare Impact Awaâ¦
- February (4)
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  - â¢ Former teacher continues to beat thâ¦
2015 (38)
- December (1)
  - â¢ Gavin Lambert, 10, doesn't allow diâ¦
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  - â¢ Fourth-grader's family, friends takâ¦
  - â¢ Emotional Homecoming Crowning Bringâ¦
- September (4)
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  - â¢ US House of Representatives Pass 21â¦
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  - â¢ Race for Christina 5K Race Set for â¦
  - â¢ Horizon Pharma plc Receives FDA Fasâ¦
- March (4)
- February (7)
- January (5)
  - â¢ Reata Enrolls First Patient in the â¦
  - â¢ Phase 2 Trial with RTA 408 now enroâ¦
  - â¢ Choosing Happiness
  - â¢ Horizon Pharma announces plans for â¦
  - â¢ 7th Annual CHOP FA Symposium Video â¦
2014 (53)
- December (4)
  - â¢ FARA Funds Four New Research Grants
  - â¢ The Advocate - Winter 2014-2015
  - â¢ Consensus Clinical Management Guideâ¦
  - â¢ Study of Cardiomyopathy in FA Patieâ¦
- November (3)
- October (2)
  - â¢ Kyle Bryant is Gearing Up for Ride â¦
  - â¢ Family making a difference in Friedâ¦
- September (3)
- August (2)
  - â¢ "We're not alone anymore": 5th Raceâ¦
  - â¢ Chondrial Therapeutics, LLC launcheâ¦
- July (9)
  - â¢ A Tampa Bay Rays Gameday Experienceâ¦
  - â¢ Kyle Bryant receives first-ever AANâ¦
  - â¢ Your invitation to the 7th Annual Câ¦
  - â¢ Ride Ataxia; to raise awareness of â¦
  - â¢ 2014 Ride Ataxia helping to make a â¦
  - â¢ International effort to fill gap inâ¦
  - â¢ The Advocate - Summer 2014
  - â¢ Attn Young Investigators - Call forâ¦
  - â¢ Abstract Submission Form
- June (2)
  - â¢ REGENX has granted Voyager a non-exâ¦
  - â¢ Ride raises money for rare disease â¦
- May (1)
  - â¢ Alameda: Family riding to save liveâ¦
- April (5)
- March (7)
  - â¢ Anna Gordon raises awareness for thâ¦
  - â¢ FDA Grants Fast Track Status to Ediâ¦
  - â¢ Edison Pharma Press Release
  - â¢ Woman Battles Genetic Condition on â¦
  - â¢ Determination and focus help two coâ¦
  - â¢ $3.25 Million Gift Creates Penn Medâ¦
  - â¢ Gavin Lambert meets John Isner at Aâ¦
- February (4)
- January (11)
  - â¢ Edison Pharmaceuticals, Inc. announâ¦
  - â¢ Sixth-Grader Grace Haupt Navigates â¦
  - â¢ International patient advocates parâ¦
  - â¢ FARA has 2 Tickets to the Super Bowâ¦
  - â¢ Repligen Corporation Announced BioMâ¦
  - â¢ Safety and Pharmacology Study of VPâ¦
  - â¢ Amanda - Meeting Justin Timberlake
  - â¢ Predictive Testing in FA Survey - Iâ¦
  - â¢ Sixth Annual Friedreich's Ataxia Syâ¦
  - â¢ The Tampa Bay Lightning honors Paulâ¦
  - â¢ Agilis Biotherapeutics Completes $8â¦
2013 (69)
- December (3)
  - â¢ The Advocate Winter 2013 - 2014
  - â¢ Friedreichâs Ataxia Research Alliâ¦
  - â¢ Friedreichâs Ataxia Research Alliâ¦
- November (4)
- October (5)
- September (9)
  - â¢ Dr. Robert Dean and The Lambert Famâ¦
  - â¢ Celebrating Ataxia Awareness Day, wâ¦
  - â¢ 'If I can affect change in other peâ¦
  - â¢ Dozens ride to raise awareness abouâ¦
  - â¢ Sam Bridgman pedaling for a cure inâ¦
  - â¢ Mapping the anatomical and functionâ¦
  - â¢ FARA Energy Ball 2013 Video
  - â¢ Tampa at center of research to cureâ¦
  - â¢ Clinical Research at USF may develoâ¦
- August (4)
- July (7)
- June (4)
- May (8)
  - â¢ Kyle Bryant From Ride Ataxia
  - â¢ Poem by Christian Maugee: A Diseaâ¦
  - â¢ Friedreich's Ataxia Awareness Day iâ¦
  - â¢ Swimming for a cause, swimming for â¦
  - â¢ Sam Bridgman Stands From Wheelchairâ¦
  - â¢ Join Us in "A New FA" Initiative foâ¦
  - â¢ Fundraising for Friedreichâs Ataxâ¦
  - â¢ Rochester Undergrads Raise $20K forâ¦
- April (6)
- March (4)
- February (9)
  - â¢ Rare Diseases Touch Lives
  - â¢ Pasco family deals with rare diseasâ¦
  - â¢ Announcing "Move YOUR Way" Initiatiâ¦
  - â¢ Altadena mother swaps wheelchair foâ¦
  - â¢ Team FARA's Beth Bax raises awareneâ¦
  - â¢ 'Cramming 72 years into 27': Book bâ¦
  - â¢ EPI-743 Clinical Trial begins at UCâ¦
  - â¢ FARA Spokesperson, Kyle Bryant, wasâ¦
  - â¢ Altadena and Santa Clarita Women Unâ¦
- January (6)
2012 (33)
- December (3)
- November (4)
- October (1)
  - â¢ Fundraiser scheduled for Hayden Desâ¦
- September (5)
  - â¢ Free concert in Queensbury to draw â¦
  - â¢ Amy Scherzer's Diary: Partying at tâ¦
  - â¢ 2012 FARA Energy Ball Video
  - â¢ USF Health to lead new Friedreich'sâ¦
  - â¢ Trike brings thrilling rides for boâ¦
- August (2)
  - â¢ James Blake & Kyle Bryant - Confideâ¦
  - â¢ Update your FARA Patient Registry Aâ¦
- July (1)
  - â¢ FA Symposium at Children's Hospitalâ¦
- June (1)
  - â¢ Interview with Kyle Bryant about Riâ¦
- May (3)
  - â¢ Friedreich's Ataxia Awareness Day iâ¦
  - â¢ St. Catherineâs Annual Jog-A-Thonâ¦
  - â¢ Impossible is Nothing.
- April (2)
  - â¢ Junior receives award named in memoâ¦
  - â¢ Family fights disease through fundrâ¦
- March (7)
  - â¢ North Texas Bike-A-Thon For Neuromuâ¦
  - â¢ Denton bike riders aim to beat rareâ¦
  - â¢ Teen's rare disease disconnects braâ¦
  - â¢ FARA Press Release - Partnership anâ¦
  - â¢ Positive Pakistani: Steel wheels
  - â¢ Research on Hearing loss in FA - Tuâ¦
  - â¢ Speaker challenges students to defiâ¦
- February (1)
  - â¢ Edison Girl's Rare Disease in Spotlâ¦
- January (3)
2011 (5)
- December (1)
  - â¢ Help support the NIH budget Write Câ¦
- November (3)
  - â¢ Gabe Ford takes anti-bullying messaâ¦
  - â¢ Good news for all patient families!
  - â¢ Reason to run
- October (1)
  - â¢ Ride Ataxia announces 2011 AAI Granâ¦

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