BARRY RICE was diagnosed with Friedreich’s ataxia (FA) just over three years ago. His balance and coordination had been deteriorating for years, but doctors couldn’t figure out why.

He finally found out what was wrong in January 2013. Barry (35) inherited FA from his parents, who are both carriers of the defective gene that causes the condition. They do not have the condition themselves. Barry recalled how his first daughter was just three months old when he got the diagnosis, telling us: “I was worried sick she would inherit it.”

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