Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

Monthly Update - September 2020


Dear friends,

In October, I usually enlist my local friends and family to assist the staff at rideATAXIA Philly near FARA'S home office. This year, rideATAXIA is moving from our neighborhood to yours with the first ever virtual rideATAXIA Global Challenge, and we want EVERYONE to join us. Our goal is to log enough miles to circumnavigate the globe in 30 days, while raising funds and awareness for FA research. As our participants log miles, we will travel virtually around the globe, via Google Earth, to "visit" different FA research and clinical locations and meet the people behind the research.

I am excited for the opportunity to bring together FA academic researchers, advocacy organizations, clinicians, industry partners, and the patient community. When we all work together as one team, we advance FA research with the sense of urgency needed to find treatments and a cure for FA.

I set an activity goal of to contribute 60 running miles to help get our team around the Globe this month. We launched the challenge on September 25th, but there is still time to join by clicking HERE.

As always, thank you for your support.

Sincerely,

Jen Farmer,
Chief Executive Officer

Read the Full Monthly Update
 

SHARE

FacebookTwitterLinkedInYoutube
Event D.jpg

News & Press Archives

Site Map     Privacy Policy     Service Terms     Log-in     Contact     Charity Navigator