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News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.


2022 FARA Flash Talk Series - Part 3


In honor of FA Awareness month in May, FARA is proud to present: The third annual FA Research Flash Talks series - featuring Young Investigators from FARA funded laboratories around the world. This four-part series covers key aspects of FARA funded research from gene silencing and disease mechanisms to therapeutic avenues and clinical insights. Each session includes Flash Talks from four to five Young Investigators (ie, postdocs and graduate students) moderated by an FA Community member. Each Flash Talk is limited to a maximum of five minutes and a single PowerPoint slide and is suitable for a lay audience.

Session 3 covered the following topics:

  • Frataxin: the conductor of the iron-sulfur supercomplex orchestra
  • Looking for a substitute for frataxin function: Can the iron-sulfur factory still run efficiently if frataxin takes the day off?
  • OCXT1, a newly discovered sidekick of frataxin: regulating the use of alternative fuel in the body
  • Now recruiting: The FA Sweet-Heart Study
  • Giving patients and caregivers a voice in evaluating drug efficacy in clinical trials

Register for the May 26th Session

View the full Flash Talks playlist
 
 

Monthly Update - May 2022

Dear friends,

This Saturday, May 21st is FA Awareness Day, and we invite you to participate in the #LendUsSomeMuscle Global Challenge! We're challenging everyone to #FlexForFA with 50 bicep curls each day of May, share your #Bicep50Challenge or your best muscle pose on social using the hashtags, and/ or donate $15 in honor of the 15,000 individuals living with FA.

Click here for more information or to donate to help us reach our goal of $15,000.

Sincerely,
Jen

Jennifer Farmer,
FARA Chief Executive Officer

Other topics in our May Monthly update:
  • FA Research Flash Talks
  • Pharma News
  • FARA Newly Funded Research
  • Minutes of Science
  • Save the Date! FARA Energy Ball
  • Open & Enrolling Studies
More...

Read the Full May Monthly Update
 

2022 FARA Flash Talk Series - Part 2


In honor of FA Awareness month in May, FARA is proud to present: The third annual FA Research Flash Talks series - featuring Young Investigators from FARA funded laboratories around the world. This four-part series covers key aspects of FARA funded research from gene silencing and disease mechanisms to therapeutic avenues and clinical insights. Each session includes Flash Talks from four to five Young Investigators (ie, postdocs and graduate students) moderated by an FA Community member. Each Flash Talk is limited to a maximum of five minutes and a single PowerPoint slide and is suitable for a lay audience.

Session 2 covered the following topics:

  • Using lab-grown heart cells as a model to study Friedreich's ataxia
  • Improving frataxin function with small antibodies from llamas
  • Gene therapy to prevent vision loss in FA
  • Studying iron in FA: from the gut to the cells
  • MyHeart CHOP: An App to Measure and Monitor Exercise

Register for May 19th or 26th Sessions

View the full Flash Talks playlist
 
 

FA Researcher Monthly Update - May 2022

Research news banner image


This month's Update for Researchers covers the following topics:

  • FA Research Flash Talk Series
  • ICAR 2022
  • Meet the Community
  • Recent FARA Funded FA Publications
  • Recent FA Publications
  • The FARA Forum Webinars
  • FARA Newly Awarded Research Grants
  • Meetings of Interest to the FA Community
  • Grant Opportunities
More...

Read the full FA Community Research News
 
 

Minutes of Science - Episode 12: Patient Reported Outcomes


Check out the latest episode in the Minutes of Science series!

Episode 12 talks about Patient Reported Outcomes - Health information reported directly from the patient without interpretation by a cliniician or anyone else.

View the full playlist
 
 

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