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News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.

June Monthly Update for Researchers

FARA Grant Program

FARA is grateful to all investigators for submitting applications to the FARA grant program. All investigators interested in FA-related research are invited to submit a Letter of Intent (LOI) through our submission portal ( The deadline for the last 2021 LOI cycle for General Grants and Postdoctoral Fellowships and Awards is July 15. The LOI must explain how the proposed research addresses FARA's grant program priorities. As FARA's funding resources are limited, this is a competitive, peer-review process, and the LOIs that specifically address FARA’s research priorities are more likely to be invited to submit a full application. Please see more information on how to apply for a FARA grant at

Read the Full June Monthly Update for Researchers

FARA's 2020 Annual Donor Impact Report is now available

FARA's 2020 Annual Donor Impact Report is now available online.
To read about key research programs and advances, as well as the fundraising efforts that fuel them, click the image below.


Monthly Update - June 2021

Dear Friends,

It is an exciting time in FA research. To keep the community informed, FARA recently hosted a webinar on the FA Treatment pipeline. The session included a review of the overall approach and strategy of the pipeline along with progress and new results for specific therapeutics approaches. If you missed it, just click HERE to view the recording.

FARA has also launched a gene therapy education series. An informed community is important to readiness for gene therapy clinical trials. The animated introductory video- Gene Therapy for Friedreich's Ataxia can be viewed by clicking HERE. Throughout the summer, education modules will be released for you to engage with in a self-paced setting.

Additionally, FARA just posted the newest installment of the Minutes of Science series- breaking down your FARA funded research in just a few minutes! Episode 5 offers a brief description of the discovery science behind gene therapy in FA. Click HERE to watch.

Stay tuned throughout the summer for more information and additional education modules. Please consider sharing these videos and other resources as they come online.


Read the Full Monthly Update

FARA Minutes of Science

Announcing the latest installment in the Minutes of Science series- breaking down your FARA funded research in just a few minutes. In Episode 5: Gene Therapy, you will learn more about some of the discovery science behind gene therapy in FA.

And to catch the other episodes in the Minutes of Science series - View the full playlist

May Monthly Update for Researchers

FARA Flash Talks

FARA is proud to announce the 4 winners for best presentations of the FA Research Flash Talks series that took place in May:

  • Jaclyn Tamaroff, Children’s Hospital of Philadelphia
  • Joseph Rainaldi, University of California San Diego
  • Julia Dunn, Children’s Hospital of Philadelphia
  • Jamison Seabury, University of Rochester
These webinars featured Young Investigators from FARA funded laboratories around the world. Each session covered the different types of research that FARA funds; from basic research on understanding the disease, to examples of therapeutic approaches, biomarker and clinical research. The webinar sessions were attended by individuals with FA, caregivers, and researchers. We are grateful to all of the young scientists who participated, to the moderators for helping with the discussion and adding their own perspective on the studies presented, and to the audience for engaging with the presenters. To view the recordings of the four sessions, click here.

Read the Full May Monthly Update for Researchers
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