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News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.


2022 FARA Flash Talk Series - Part 1


In honor of FA Awareness month in May, FARA is proud to present: The third annual FA Research Flash Talks series - featuring Young Investigators from FARA funded laboratories around the world. This four-part series covers key aspects of FARA funded research from gene silencing and disease mechanisms to therapeutic avenues and clinical insights. Each session includes Flash Talks from four to five Young Investigators (ie, postdocs and graduate students) moderated by an FA Community member. Each Flash Talk is limited to a maximum of five minutes and a single PowerPoint slide and is suitable for a lay audience.

Session 1 covered the following topics:

  • Learning about the function of frataxin from amoebas
  • Discovering new disease pathways in FA brain cells
  • Investigating heart cell metabolic changes to understand FA cardiomyopathy
  • Gene editing and stem cells: turning futuristic concepts into realistic therapies for FA

Register for May 12th, 19th or 26th Sessions

View the full Flash Talks playlist
 
 

Office Hours with FARA

Office Hours – April 7th and 12th, 2022

FARA held virtual office hours sessions with the community to answer questions about the progress in the treatment pipeline. During each one-hour session, FARA Chief Executive Officer, Jen Farmer and FARA Chief Scientific Officer, Barbara Tate, PhD summarized the latest news and addressed your key questions. The following slides contain the material presented at the Office Hours and the answers to questions that were submitted or asked during the meeting.
(View the pre-meeting post)

View the Office Hours Slides
 
 
 

SAVE THE DATE! United Against Ataxia Hill Day - September 21, 2022

NAF Logo      FARA Logo
SAVE THE DATE!

4th Annual United Against Ataxia Hill Day
Wednesday, September 21, 2022
Virtual Event


We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities. Representatives from NAF and FARA will schedule meetings with Congressional members to discuss issues important to the Ataxia community.

Read More Here

 
 

Join Us in May for the FA Research Flash Talk Series!

Join us for the
FA Research Flash Talk Series

In honor of FA Awareness month in May, FARA is proud to present: The third annual FA Research Flash Talks series - featuring Young Investigators from FARA funded laboratories around the world. This four-part series will cover key aspects of FARA funded research from gene silencing and disease mechanisms to therapeutic avenues and clinical insights. Each session will include Flash Talks from five Young Investigators (ie, postdocs and graduate students) and will be moderated by an FA Community member. Each Flash Talk will be limited to a maximum of five minutes and a single PowerPoint slide and will be suitable for a lay audience. We will also allott time for a brief Q&A following the talks.

Presenters and Schedule


THURSDAYS @12 NOON (ET)
  MAY 5TH
  MAY 12TH
  MAY 19TH
  MAY 26TH


Click the button below to register for one, two, three, or all four of the sessions. You will have the option to select which sessions you wish to attend.

Register for the Sessions
 
 
 

Monthly Update - April 2022

Dear friends,

This monthly update contains updates from several pharma companies developing therapies for FA as well as notices for enrolling clinical trials. It is an exciting time for FA research. We recognize that the decision whether to participate in a trial is a significant one, requiring both a travel and a time commitment. Our aim is to help provide you with the information to help make an informed decision. Thank you to everyone who has given clinical research participation careful consideration. Together, we will treat and cure FA!

Sincerely,
Jen

Jennifer Farmer,
FARA Chief Executive Officer

Other topics in our April Monthly update:
  • Pharma News
  • FA Patient Symposium
  • Minutes of Science
  • Ataxia Athlete Initiative (AAI)
  • Open & Enrolling Studies
More...

Read the Full April Monthly Update
 

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