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News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.

Friedreich's ataxia Community Research News - April 2022

Research news banner image

This month's Update for Researchers covers the following topics:

  • New Funding Opportunities for Friedreich Ataxia Research from the DoD
  • ICAR 2022
  • Pharma News
  • Meet the Community
  • Recent FARA Funded FA Publications
  • Recent FA Publications
  • The FARA Forum Webinars
  • FARA Newly Awarded Research Grants
  • Meetings of Interest to the FA Community
  • Grant Opportunities

Read the full FA Community Research News

Minutes of Science - Episode 11: Role of Iron in FA

Check out the latest episode in the Minutes of Science series!

Episode 11 talks about ferroptosis - a process of cell loss dependent on iron.

View the full playlist

Advocacy Newsletter - March 2022

This month's Advocacy Newsletter covers the following topics:

  • Friedreich's Ataxia has Been Added to the DOD's Congressionally Directed Medical Research Programs!
  • Rare Disease Day/Week Report
  • Capitol Hill Updates
  • Upcoming Advocacy Events
  • Announcements


Read the full March Advocacy Newsletter

Office Hours with FARA

Office Hours with FARA:
Q&A sessions to help explain the latest FA research headlines.

Since the beginning of the year, there have been a number of treatment pipeline updates from pharmaceutical/biotech companies and academic investigators developing therapies for Friedreich's Ataxia. Join FARA for a virtual office hours session on Wednesday, April 6 at noon (ET) or Tuesday, April 12th at 7pm (ET) to learn more about this progress in the treatment pipeline. During these one-hour sessions, FARA Chief Executive Officer, Jen Farmer and FARA Chief Scientific Officer, Barbara Tate, PhD will summarize the latest news and address your key questions.

In the interest of facilitating meaningful discussion between session attendees and FARA, please submit your questions in advance, by Friday, April 1, here. Each session will be capped at 50 attendees. To allow for the maximum participation across families, please limit your registration to one person and one session per family.

Some of the news that will be covered includes:

Register for April 6 @ 12pm (ET) Office Hours
Register for April 12 @ 7pm (ET) Office Hours

FARA Job Posting: Communications & Social Media Coordinator

FARA is seeking a full time Communications & Social Media Coordinator

Position: Communications & Social Media Coordinator Status: Full Time Position
Reports to: VP-Fundraising & Communications Supervisory Responsibility: n/a
Location: Downingtown, PA Office
(In-person preferred but hybrid work arrangements considered)
Must be willing to occasionally travel and work weekends.
Join a high energy, committed team of professionals dedicated to supporting the advancement of research leading to treatments for people living with Friedreich’s ataxia.

Please click HERE for more information.

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