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News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.

FARA receives Quality of Life grant from Christopher and Dana Reeve Foundation

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Ride Ataxia NorCal Press Release

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The Outback Steakhouse Pro-Am Teams Up with Ride Ataxia Tampa Bay

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Neurology Now - Friedreich's Ataxia

This article just came out in Neurology Now, a publication of the American Academy of Neurologists. This publication is sent to neurologists offices around the country and distributed in waiting rooms and offices. The article focuses on one approach to therapy that FARA has been supporting, HDAC inhibition. The article is not comprehensive, it does not review all of the potential therapies, however it does recognize the promise and progress of FA research, specifically HDAC inhibitors, and highlights the work of Dr. Joel Gottesfeld, a FARA funded researcher.

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Classmate's disorder leads to school effort

Alec Gaston usually takes his time between the bells at Perrysburg High School, walking to his locker and chatting with friends in the hallways.

Not yesterday.

The high school junior needed those five minutes to power down the hallways in a wheelchair.

The 16-year-old was one of three students and six staff members who spent the day using wheelchairs to raise awareness about classmate Zac Zies' degenerative neuromuscular disorder called Friedreich's ataxia.

Alec said he was surprised at how physically demanding it was to navigate through the school in a wheelchair. It was tricky to open the doors, to roll around the crowds in the hallway. His arms ached.

"The kids that are in these wheelchairs - I have no idea how they do it every day," Alec said. "My daily routine has just been thrown off. I can't talk to people in the hallways. I'm literally trying to get from A to B."

Read More: Classmate's disorder leads to school effort

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