Washington, D.C. — Although there is no effective treatment or cure available, Friedreich's Ataxia patients and families have more reason for real hope as they prepare events around the country for "Friedreich's Ataxia Awareness Day" on May 21st. The day is recognized in a Congressional proclamation and through various events around the country. Friedreich's Ataxia is a fatal, hereditary, degenerative, neurological disease that typically first becomes noticeable when children are in elementary school.
"An extraordinary explosion of research insights has followed the identification of the Friedreich's Ataxia gene in 1996," said U.S. Rep John A. Boehner of Ohio in introducing the Congressional proclamation. We see "powerful evidence of the increasing hope and determination to conquer Friedreich's Ataxia. There is also a growing conviction that treatments can and will be developed for this disease and that the resulting insights will be broadly applicable across a wide range of neurological disorders such as Parkinson's, Huntington's and Alzheimer's."