News & Press Releases
Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.
Third Annual Friedreich's Ataxia Symposium
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Student Crowned Miss Wheelchair NH
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Kyle Bryant Friedreich’s Ataxia Race Across America RAAM
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You are about to pedal your trike across several states, with a desire to span the distance between two oceans. There are many mountain passes that you must cross, several long deserts, countless horrible road conditions, heavy traffic in places, and numerous other obstacles that will challenge you to the very core. You wonder if you have what it takes to make a trike trip like this. One excuse after another crops up in your mind, each attempting to convince you that rational thinking has left your normally-sound mind. You can’t do this! It’s a bigger bite than you can chew! Yet somehow, another inner voice rises above the din of negative images, the will to make your vision reality, and so the debate rages.
Read More: Kyle Bryant Friedreich’s Ataxia Race Across America RAAM
Me, My Bike, and I - Notes from the RAAM Finish Line
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I have been off the bike for MUCH longer than I would want to be, but I have been working as finish line staff for The Race Across America. If you are not familiar with RAAM you can read all about it at www.raceacrossamerica.org In a nutshell, it is a bicycle race from Oceanside, CA to Annapolis, MD.
Although I did not actually "ride" in the Race Across America, I did experience it differently than I had in the past. I worked as one of the vehicle drivers that had the privilege of meeting the riders at the final time station on Bestgate Rd, and parading them from there to the finish line at City Dock. I got so much more out of that experience than I bargained for, and I have already signed up again for next year.
Read More: Me, My Bike, and I - Notes from the RAAM Finish Line
- FARA hosts Friedreich's ataxia Cardiac Summit on June 11th in Philadelphia
- The Ride Of His Life - Kyle Bryant in Sactown Magazine
- Team FARA - Race Across America - on channel 10 news
- The 2010 Kyle Bryant Translational Research Award and The Bronya J. Keats Award for International Collaboration in Research on Friedreich's Ataxia
- Pharma's Orphans - FARA in Pharmaceutical Executives Magazine