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News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.

Scientists Herald Beginning of the "Treatment Era" for Friedreich's Ataxia

Washington, D.C. — Researchers from around the world are collaborating in making real progress they hope will lead first to helpful treatments and then to more curative therapies for Friedreich's ataxia, a rare, degenerative, neurological disease that puts its victims in wheelchairs and often leads to death in early adulthood. The latest research is detailed in the current issue of the FARA Update highlighting an international conference that brought together 100 top researchers from around the world.

"There are really a number of promising approaches underway exploring prospective gene-based and protein-based repair mechanisms for Friedreich's ataxia," said Ronald Bartek, President of the Friedreich's Ataxia Research Alliance. "Friedreich's research is also drawing upon a wealth of knowledge gained from other neurological diseases and even cancer research that is bringing us closer to finding an effective treatment."

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