News & Blog

Press Release: Solid Biosciences Announces European Commission Orphan Designation for SGT-212 and Continued Progress in the FALCON Trial in Friedreich’s Ataxia

Meet the Community: Abbigale Cuzick

2026 FA Symposium and rideATAXIA Philly Recap

Webinar Recording: Lexeo Therapeutics September 2026

Meet the Community: Eduardo Tito

October 2026 – Advocacy Newsletter

Community Statement: Neurocrine Biosciences announces the first clinical study of NBIB-223 (the FACET™ study), An investigational gene therapy for FA

Meet the Community: Becky Taylor

Meet the Community: Natalie Baker

Press Release & Community Statement: Lexeo Therapeutics Enters Into Agreement to Acquire Mantle Therapeutics and Announces Multiple New Strategic Collaborations

Meet the Community: Lilly King

FARA Marks 18 Years of Empowering Athletes Through the Ataxian Athlete Initiative (AAI)