News & Blog

Meet the Community – Alijana Shakya

April 2023 – Advocacy Newsletter

Meet the Community 2: A Closer Look – Helen Kearney

Meet the Community – Reetam Mukherjee

Meet the Community 2: A Closer Look – Brittany Wiseman

Meet the Community 2: A Closer Look – Dr. Georg Herdt

Meet the Community – Dee Smith

Meet the Community – David Zehnder

First Medication to Treat Friedreich’s Ataxia Approved on Rare Disease Day!

February 2023 – Advocacy Newsletter

A Gene-Edited Cell Therapy for an Incurable Disease: Researchers Receive USD 4.8M Grant to Treat Friedreich’s Ataxia

Dr. Stepanova Presented with $20,000 Research Grant from Uplifting Athletes