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Advocacy
Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.
Please take a moment to explore FARA’s advocacy pages to learn more about our initiatives and ways you can get involved.
FARA Advocacy News
November 2024 - Advocacy Newsletter
Advocacy
September 2024 - Advocacy Newsletter
Advocacy
Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”
Advocacy
United Against Ataxia Hill Day 2024 – Registration open!
Advocacy, FARA News
August 2024 - Advocacy Newsletter
Advocacy
FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable
Advocacy, FARA News
June 2024 - Advocacy Newsletter
Advocacy
March 2024 - Advocacy Newsletter
Advocacy
February 2024 – Advocacy Newsletter
Advocacy
January 2024 – Advocacy Newsletter
Advocacy
May 2023 – Advocacy Newsletters
Advocacy