MESSAGE FOR FA FAMILIES

Dear FA family,

Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.

The FA Community is an active and supportive one. Together, we fund and facilitate research to slow, stop, reverse, and cure Friedreich’s ataxia (FA). We hope there is comfort in knowing you are not alone. Visit our Understanding FA section to help you to learn about and manage FA.
Visit Understanding FA
Community members and researchers at the Napierala Lab at UT Southwestern.
LIFE CHANGING RESEARCH

Leading to the discovery and advancement of treatments for FA

Join a passionate community and change the course of this rare disease

We work in collaboration and with a sense of urgency to build strong relationships, expand knowledge, and remove uncertainty.
Two women looking at a presentation
FUNDING

Apply for a research grant and make an impact

FARA funds a competitive, peer-reviewed grant program.

COLLABORATION

Work with an experienced research community

FARA fosters meaningful relationships, helping to develop new life changing treatments for FA.

KNOWLEDGE

Utilize FARA resources to help optimize the pace of research

Benefit from our thriving and experienced research community and utilize our extensive resource library.

Visit Research section

Fuel research progress

Your fundraising efforts today translate to research breakthroughs tomorrow.
Make a difference
FARA NEWS

Latest news from our community.

News | Mar 31, 2025 | News

March 2025 - Advocacy Newsletter

Advocacy
News | Mar 24, 2025 | News

Press Release & Community Update: Lexeo Therapeutics Reports Fourth Quarter and Full Year 2024 Financial Results and Operational Highlights

Industry News
FARA events

Our upcoming events.

EVENT | Apr 3 2025

Community Conversations: The Power of Advocacy for FA Research

Join us on Thursday, April 3, at 12 p.m. ET for a conversation about the power of advocacy for FA research in the United States and around the world. In this session, learn more about what patient advocacy organizations are doing to create change and how acting locally can have an impact globally.

Education
Virtual
EVENT | Apr 4 2025

University of Florida FA Forum: Research, Wellness, and Community Conversations

Agenda coming soon! Light refreshments to be served.

Education
UF Clinical and Translational Science Institute, Gainesville, Florida